May 12 is International ME/CFS Day

Millions of ME/CFS victims are missing from LIFE

Every year this date reminds me that we STILL have no diagnostic marker, treatment, or cure for the devastating disease that stole my life as a physicist in 1989, the week of Nov. 5th.

Another year with nothing really new that can turn me back into a functioning person.

Or even help new victims.

Except that this year there is an understanding that, if we didn’t know what virus had done the damage, ALMOST ALL of the long-covid victims would be diagnosed, based on symptoms, with ME.

But we know that virus, and possibly that will help some of the targeted research that now has been funded to figure out the mechanism of the damage and find a way to reverse some of it.

And maybe, MAYBE, some of that research will benefit newer victims of ME/CFS, and possibly – though the damage is so long-standing it’s hard to think how – those of us who have been waiting for decades.

If you pray, pray for us.

If you’re not the praying kind, think of us kindly.

We’re still sick – and I wouldn’t wish this illness on Putin.

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Meanwhile, Pride’s Children: PURGATORY is still in existence because of ME/CFS, and NETHERWORLD will be out very soon (the disease makes me very slow).

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Having trouble writing a promised review?

SAY THANK YOU! TO A FAVORITE AUTHOR

And they cost the reader nothing but a few minutes.

If you’ve never done it before, or it’s been a while, that first one seems, uh, hard.

Often the best time to write one is when you have just finished a book, and can’t wait to share.

But many people are shy, tell themselves they’ll write one later, and never end up doing it.

So: to make it easier, save either the link to this post, or to Rosie’s, and be ready the next time you’re bursting to say something, to extend your time in the book’s universe just a little bit longer.

Rosie Amber’s Review Templates

Rosie Amber has a lovely set of templates that will get you going on your review. Fill in whichever of the prompts you like (not necessary to write more than about twenty words), and voilà, review!

Want to write something longer? Keep typing and wax eloquent. Tell other potential readers why you like a book.

Create in your wordprocessor of choice and copy/paste, OR write directly into Amazon’s prompts for a review. The templates are SO much more encouraging and helpful than facing a blank page or review form. Thanks, Rosie!

While at Rosie‘s, check around – there are so many wonderful reviews. There’s an easy sign-up to have the blog come to your inbox.

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Can you tell I’m getting ready to ask you to read and review a book?

Authors positively LOVE reviews.

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Where have all the bloggers gone?

Inspired by Where have all the flowers gone? Popular folk song

WANTED: INTERESTING BLOG POSTS ABOUT LIFE AND WRITING

If you’re of a certain age, or ever went to Scout camp, you may already been humming along.

I’m having to sign up to follow and receive via email more and more blogs, because the bloggers I’ve been following for years are publishing fewer and fewer posts, and I need reading material to keep myself centered in the writer-support blogosphere I inhabit.

I write fewer posts because most of my posts have had something to do with the skills I acquired while learning to write – and I’m not actively working on those right now unless I find something I need to learn to get through a current scene.

Because I’m getting to the end of Netherworld – and know exactly where I’m going.

And there aren’t any tricky or new scenes – just the kind of wrapping up I’m hoping will put smiles on readers’ faces, followed by worried frowns about the implications!

I use writers’ blogs to stay up-to-date

I haven’t done marketing in a while (and it shows) because I have two brain cells, and one is needed for breathing, while the other takes an occasional turn at writing a few more words.

But one of these days someone will post something which will trigger something else, and I’ll be off and running.

There are lots of beginner ‘How to’ posts, fewer post on marketing, and almost none on marketing a very small output. At least not successfully.

So I take on new blogs

when I find one which has something a little less basic to say, or is in an area I probably won’t write – hoping to steal the genesis of an idea I can tweak into the book-selling campaign of the century.

I’d appreciate suggestions of blogs to follow, especially if you wouldn’t mind telling me what you like about them.

New platforms may be the problem

I don’t think I’m going to try Instagram or Tik Tok or Book Tok or even Twitter – mostly because I don’t think that’s where my kind of writer finds readers and followers.

Certainly not Youtube – not now! The competition must be fierce.

Trying a Patreon was a waste of time for me (this time) because you have to bring your own followers – and then generate extra material for them. The latter I like – I have lots of words about process and writing – but I don’t have yet the critical mass of followers, and, with very little energy, can’t afford to try.

But a lot of people ARE moving to the new platforms – the young ‘uns don’t use FB much any more.

Where are the readers?

To be more specific for me, where are the readers of mainstream/literary/contemporary fiction, but only those who are not hiding behind the wall of ‘I only read traditionally published and vetted fiction.’

And that, my dear readers, I have not solved yet.

But then I spend most of my time writing lately, and ultimately that will have to yield the answer.

So I try each new blog I find through blogs I already read or people who somehow find me, and participate for a while to see if we are a good fit. There are tens of thousands of my words out there contributing to these fun conversations.

Eventually we will reach critical mass, right?

I’d hate to think the indie experiment is doomed.

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Send me your recommended blogs.

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Fixing what’s not working on novel

HOW LONG DO YOU STICK IT OUT?

Over at C h a z z W r i t e s, Chazz asks: Are you ready to fix what’s not working?

He kindly provided a long list of questions, and after I got started, I realized I should post this here, and just leave the first two answers as a teaser on his blog, which you should visit and follow.

He starts his post with:

Publishing gurus are full of ideas for you. To optimize your sales, they might suggest new covers. They will tell you that your only barrier to startling success is a simple (yet costly) tweak to your book description.

ChazzWrites – 19 March 2022

He asks you:

How do we adapt? Consider these questions:

Here is my list of answers – a good set to answer for yourself in writing. I’ve edited or changed his questions a bit in places to suit me better – you should read his.

What is success to me?

People reading and reviewing my mainstream trilogy – I am pretty sure it will take off in a big way some day, and these people keep me writing.

What works for you?

Doing it exactly my way, designed for a damaged brain and no energy – because it works.

What doesn’t?

Everyone else’s suggestions – I can’t follow them, and when I make the big effort, they don’t work for me.

Have you tested other options?

Yes, though not extensively – I’m VERY slow, and this takes time away from writing.

Have you played with the variables?

Not a lot – by definition, half of A/B testing is going to be wrong!

Would you drop what isn’t working?

In principle, yes – but I have to somehow decide people who don’t know me and my work know what they’re talking about. So far, not convinced.

Are you doing more of what works for you?

I am – and I do as soon as I identify something that works, I do more of it. When I have time and energy, the kicker.

What haven’t you succeeded at trying that might work?

Going viral (not something you can just ‘try.’) Getting on Oprah or equivalent. Practically, attracting a BIG influencer who goes to bat for me.

Have you tried that?

Have asked maybe ten – they all have shied away or answered in generalities or haven’t answered at all. Doing things their way works for them; altering, looking at the outliers, not so much.

Before changing, have you completed other projects?

Yes. I can only work on one thing at a times – very little ability to do elsewise.

Have you analyzed pros and cons of a strategy such as changing genres?

Not until I finish the mainstream trilogy (but I managed to tuck some historical fiction AND some science fiction into it).

What would your costs be?

Funny: They go from me, my time, and my energy, immediately to a very expensive version of let other people do it. I could probably afford it, if I were convinced it would make a permanent difference – but I don’t believe that, because the limitation is still me.

What would the cost/benefit of getting paid helpers be?

I would have to sell a LOT more books to make them pay for themselves, and, since I will never be able to create much of a backlist, there won’t be much help from other work, so it would depend on a single huge campaign for the trilogy.

How much money do you need to live?

Fortunately, I’m retired, settled into a retirement community, and okay.

How much MORE do you need for WANTS?

Lucky that way – none.

Do you have the helpers to effect this change?

Not yet, though I’ve approached several possibilities, and listened carefully to their answers.

Would this be an investment, or money down the drain?

It’s my life, and my only chance of a legacy, since I became chronically ill.

Is a helper worth the time or mental toll it will require?

Haven’t found one yet that is.

What’s keeping you from trying?

Lack of energy.

What’s the worst that could happen?

No increased sales, and the loss of a lot of money which should have gone to charities and the kids.

What’s the best that could happen?

Breakout – and a fame which wouldn’t make much difference to a very isolated disabled life, but would be fun (instead of always being odd woman out).

Is the new way of working a passion, an excuse, or an escape?

Passion, of course. Nothing else is worth the kind of effort necessary.

What makes your new approach significantly different from old projects that failed?

I’m doing it myself; the failed one approached traditional publishing and didn’t get a brass ring.

Are you happy or excited to make this new commitment?

Haven’t had a credible proposition yet; there’s one possibility in the works – a PR company. I’m waiting to hear, because they will have to do all the changing – I don’t have the capacity to.

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And there you have my answers.

Thanks to Chazz!

Go visit, read his actual questions, answer them for yourself.

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Don’t throw me under the bus

Davis, California – February 2022

THEY PROMISED US AN ENJOYABLE RETIREMENT

As working people, the ‘system’ promised us, if we worked hard and saved our pennies for retirement, didn’t spend it all, that we would enjoy some years of healthy living, ease, family, and freedom.

Now they want to renege.

The rest of the world wants to go back to ‘normal,’ ignore any public health measures that might prevent passing on a deadly virus which keeps mutating into something even more dire (so far), has killed oh, around a million Americans directly, and, if I’m reading the statistics right, another million or so in ‘excess deaths’ – deaths which wouldn’t have happened if normal ailments had been treated in hospitals in a timely manner.

Well, those hospitals were full of covid patients – still are.

And after every new peak, ‘they’ are quick to assume it’s the last of its kind (remember after Delta, and before Omicron cases started climbing stratospherically?), and give up restrictions before people get tired of them.

The view from the vulnerable block is pure astonishment

In the US and in much of Europe they are already preparing to ‘live with the virus’ – everyone will eventually get it, THE OLD, SICK, VULNERABLE, IMMUNOCOMPROMISED, FRAGILE WILL DIE, and the world will go back to being a lovely place for idiots to party and catch covid at a concert, restaurant, or bar.

And take it home to Grandma.

Who needs Grandma anyway?

People who might have lived for years, decades

Because what they had, while not fun, is manageable: diabetes, heart disease, obesity…

Or potentially curable: some forms of cancer, getting a replacement kidney or a part of someone’s liver or a heart transplant…

are incredibly susceptible to getting covid.

They don’t just fade away: death from covid is painful, exhausting, humiliating – and with little support from family and friends – lonely.

And people dying of covid in a hospital cause other people not to be able to lifesaving surgery or care – and die, too.

Let us get rid of one of these right up front:

Obesity. It’s an ugly word. It’s a word of our time. Before, the chubby of us had reserves for surviving – and potentially fighting off – some diseases, and lasted longer.

Be that as it may.

It is not something that someone can change quickly. Or at all.

Doctor-supervised diets have a 2% success rate after two years.

And it is a cop-out. Just because a doctor doesn’t like it, and blames everything on it, and says, “If you just lost weight and exercised, you wouldn’t be sick,” doesn’t make it so.

And back to the important qualification for being useless: there isn’t a person on this Earth who can lower their weight consistently and safely QUICKLY.

Another is exercise

For post-viral illnesses such as long-covid, ME/CFS, and possibly any others such as chronic Lyme disease, exercise is CONTRAINDICATED. Read that carefully. It means: “Doesn’t help and DOES harm.”

The exercise-and-it’s-all-in-your-head brigade have been thoroughly debunked, their statistics shown to be bad science, and guidelines are changing everywhere. Not fast enough – and with rearguard actions by the biopsychosocial cabal trying to claim their methods actually work (they don’t want to lose all that lovely research money, ‘treatment’ money, and prestige; and in some cases knighthoods or damehoods (sic?)).

New people with our diseases are needy and desperate. They will grasp at anything that offers hope, and they are not good at separating the quacks from the legitimate scientists. They are given something and told it works, and they try over and over, blaming themselves when non-proven methods actually DON’T work.

Worse than that: they make themselves sicker. For every post-exertional crash, the baseline lowers on what a person can safely do. Enough of those, with the very best intentions, and people end up bed-ridden or worse.

Exercise is dangerous for people recovering from these viruses. DANGEROUS.

Compassion fatigue

I always thought, when I was younger, that I would be able to work my way out of anything by just putting the effort in.

As an old person, I would keep walking, keep doing yoga, have the time for more exercise.

And that people who ‘let themselves go’ had brought it all on themselves. Well, some of them have. But I’ve been trying for over three decades and guess what? NOPE. You can’t work yourself out of CFS.

You DO stop going to doctors because they don’t like illnesses without a cookbook approach. They don’t like mysterious illnesses that somehow have normal bloodwork – for the tests the insurance companies will allow.

They don’t like taking into account one of my widely-shared symptoms: intolerance of medicines. We are the people who get all the side-effects of almost everything that works for ‘normal’ people. I actually went through four of the five classes of blood-pressure medications after getting stents (and both Plavix and Effient – which made me deadly ill). My last cardiologist in New Jersey said the fifth kind of BP drugs would most likely make me quite sick, so we skipped them.

The protection of the booster shots for the immunocompromised

should be extended to the elderly if it is warranted.

I’m in the vulnerable category – I got my fourth shot, considered the second booster shot, four days ago. My arm still hurts and a day after the shot during which I felt as if I had the flu was followed by two days of not getting much done because of being a bit woozy and brain-fogged, and I don’t care at all.

In a week and a half or so, I will have whatever immunity my body can build up from the shots, and I was the one who nagged my doctor’s office as soon as the CDC said people like me should have another booster.

We are back, cautiously, to congregant dining – but the husband and I are taking it very slow because I don’t want to get covid at all (I already have the equivalent of long covid; online friends who have had covid on top of ME/CFS are struggling). Everyone here wears masks, distances socially, and avoids as many group activities as possible – except for today, when we celebrated the lives of those fellow residents who left us this past year with a short ceremony and two songs – sung through my KN95 mask.

We are all wondering what will follow Omicron and its B version.

It will take a long time before people like me will feel safe – and seeing mask and other requirements vanishing left and right, when the scientists tell us it is NOT over, doesn’t help.

PLEASE continue to be careful and smart even when the official rules relax.

The life you save may be someone you love.

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I’m hoping my brain will be usable for writing fiction tomorrow.

Please pop over to prideschildren.com and follow if you are a fan of mainstream fiction of the ‘big book variety.’ There is a short story prequel there and a sample. PLUS the first scene of NETHERWORLD, and reports of how close it is to being published.

This post was composed while not completely with it – may be a bit ranty.

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What to do with a negative review

Can ‘Good’ come from ‘Evil’?

WHAT TO DO WHEN A READER DISLIKES YOUR WORK?

The traditional answer to this is, believe it or not, NOTHING.

Because a reader’s review is as much their opinion as your book is yours.

And you are grateful to have a reader who was moved to take up keyboard and leave you feedback.

And because you cannot please everyone.

And, most importantly, because have negative reviews is a rite of passage for writers, and now you’ve had yours.

Phew.

And here you thought having all 5* reviews was a mark of a good writer, and now your stellar reputation is trampled forever.

Is acceptance your only option, then?

Well, no.

The first instinct may be to send out destroyer missiles, but that may not actually remove the stain on your reputation.

The review stays.

But I came across a very creative way to use and benefit from that bad review on a blog post of Tahani Nelson, a fantasy writer. She turned a negative review (a reader got almost to the end of the book quite happily until she realized, oh dear, the warrior princess was gay!) into a great ad for her book. I won’t spoil her thunder – she deserves people to go read her post. Or at least scroll down to her ad. It’s gorgeous. Go ahead – I’ll wait.

So, I thought – YOU have some 1* and 2* reviews

What creative use are you going to make of them?

First, two of the ads (maybe written by the same person?) have the same error: ‘It is 545 pages long.’ Um, no. The book is 485 pages long.

The reviewer accused me of writing tedious descriptions about everything. Um, no. If anything, I am extremely parsimonious in the description department for a peculiar reason: Pride’s Children is written in very deep close multiple third person point of view, and I only use descriptions a character would actually THINK at the moment, which eliminates most descriptions (characters don’t do more than noticing a detail or two most of the time). Whether they’re tedious or not, that I’ll leave up to the individual reader, but I try to think of something obvious but fresh or relevant.

One reviewer must have thought the first paragraph of the prologue – a short excerpt from a faux New Yorker article that is my link between books, and the ‘outside’ view of the story from a magazine writer’s perspective years later – was actually the first paragraph of the book – and called it a run-on sentence. The paragraph is 79 words, a complex sentence but not a run on. The prologue is labeled Prothalamion – in honor of Dorothy L. Sayers who used one brilliantly in Busman’s Honeymoon.

The actual first sentence in Chapter 1 is 11 short sentences in 93 words. With periods or ellipses between them – clearly delimited.

I was accused of needing to prove I have an immense vocabulary. Why, thanks, I do know a lot of words, but all I try to do is use the words the characters would use. Which sometimes is very constraining.

The missing clues to my bad reviews (so far)

Several pieces in the negative reviews clued me in to the problem, and it’s a different one than I originally thought.

“I read Pride’s Children because of my daughter’s suggestion. I am not a fan of romance novels”

and

“the book was much too long. It could have been easily condensed to 2/3 the length”

and

“The number of quotations before each chapter was overkill – for the most part they only made sense to me after the chapter had been read.

And these pieces from positive reviews give different clues:

“These relationships do include romantic attraction and love (and even have it as a central focus), but it’s not the sole focus; family relationships, friendships, working relationships, etc. -some healthy and some not– come under the lens as well. And the development of the central attraction isn’t a “romance,” except in the sense that a Jane Austen novel could be called one (and allowing for differences in setting and literary conventions between the early 19th and early 21st centuries, a comparison to Austen isn’t entirely inapt!)”

and

“I cannot recommend this book, this trilogy, highly enough – but not to everyone. This is a book for readers who appreciate literary fiction and a very deeply developed romance with a thoughtful debate on ethics. I believe the pace and the delayed gratification will frustrate many modern romance readers who look for fast-burning romance, titillation, and simple love stories. However, if you are a reader who will appreciate a modern ‘Jane Eyre’, this trilogy is for you.”

My problem?

There are MANY Romance readers and writers in the world – and they do extremely well by each other.

But they have styles and tropes and limitations and expectations, among others:

  • only two characters in the relationship (excepting the exceptions for subgenres)
  • a point of view that goes back and forth at certain times between the two lovers-to-be – in the same scene
  • relative short
  • a particular style of covers
  • a happy ending (HEA – happily ever after) or (HFN – happy for now)

And somehow or other, even when the cover, description, and ad copy try to convey that Pride’s Children is NOT a Romance which follows what the readers expect, some readers picked it up, read, noticed things were not what they expected – but kept going all the way to the end (skimming, I’m assuming, in some places) – and still decided they were not happy, and left a review. An unhappy one. A 1* or 2* review.

I think that may mean I need to work on my ad copy. I don’t know how to say ‘mainstream love story’ as opposed to ‘Romance’ – because it sounds horribly condescending somehow, but wouldn’t you want to know there were supernatural beings or zombies in a book before you chose it to read, given your preferences either way?

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Suggestions welcome.

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If you read, or even prefer, mainstream love stories, and haven’t signed up to be notified about mine, please hop over to the Pride’s Children blog, and follow so you will be informed when they come out. Not frequently – I’m dreadfully slow – but they’re big fat complicated stories when they do.

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Don’t wait for the band wagon

CLIMB ABOARD NOW WHILE THERE ARE STILL GOOD SEATS

It is axiomatic that there are no overnight successes.

Why?

Because it takes huge amounts of determination and preparation to be ready to respond well when an opportunity finally comes along – and if you’re not ready, it will leave you in the dust and move on.

Take your American Idol singer

The pipes that astonish are not natural, spur of the moment, magically angelic. Nope. If so, they are most likely to freeze at the first sign of stress.

The singer not only sings a lot in the shower, but has had parents paying for individual teachers, has been singing in the church choir, has spent years listening to music, and has been through a whole list of roles in the school plays.

Being on stage in front of a bunch of strangers and wowing Simon Cowell is not a fluke.

The illusion that it is sudden and unexpected and a direct blessing from Heaven is for the AUDIENCE. The ones who want to jump on the bandwagon as it goes by because, “I’m just as good as she is.” It keeps them buying the advertised products, watching the shows, purchasing tickets for Kelly Clarkson when she comes to town.

Even the little Wow! stories are the product of hours and hours and hours of cameramen recording every remotely possible candidate practicing in the hall – to be scrolled through for the exciting bits AFTER the winner has been chosen.

It matters only for the individuals

The producers don’t care who wins – they have SO many contestants that their triage is stricter than that after a major accident: they may let a few charismatic duds go through a few levels they aren’t qualified for – one leaves in the random possibility because crowds are fickle, but the staff’s job is to make sure that the two or three possibles culled out of each thousand who apply are usable.

They have no investment in a particular candidate. It’s dangerous to have one because talent and stardom are unpredictable beasts.

But the individual candidates, those who want to win, have to be ready to win – if it happens.

Artists need support BEFORE

before they are recognized as somehow ‘good.’

before they get discouraged and stop producing amazing work.

before everyone else discovers them.

It is even more important for those who are slow, or for whom doing the work is a great mental and/or physical effort.

I know that I will never forget the earliest responses on Wattpad from other writers, the ones who kept me cheerfully sharpening my nose. Because they KNEW – and SAID so – BEFORE others.

Peter Hyland, one of my characters, says,

“None of my friends are perfect. And most of them are irreplaceable. They provide the mirror when I get too big for my britches. New ones are hard to find.” He squinted at the dying sun. “I need them far more than they need me.

PRIDE’S CHILDREN: PURGATORY, Chapter 13

It is hard for people to commit, to say, “I’ve found this new writer/photographer/painter…, and you should look into their work” to recommend someone to a friend. What if the friend doesn’t like the new artist? Easier not to say anything, and just nod wisely.

But once the wagon is full, one more supporter isn’t going to make that much of a difference.

Getting started is hard – but up to the writer, who is the one to make the decision when something is first ready to be released to the public.

But keeping it going is much harder still, and that’s when the support can make the difference between someone going on to do creditable work – or quitting.

Why now?

It may or may not be important, or a stepping stone of any size, but I’m saying thank you to all my readers who have been saying, “I like what you write,” since I started putting Pride’s Children out in serial form on Wattpad.

You may or may not have noticed the new badge on the sidebar.

Pride’s Children: PURGATORY has been named Indies Today’s 2021 BEST CONTEMPORARY novel, and I’d love it if those of you who read mainstream fiction would pop over to my other site, the one for the books, and sign up to follow that blog as I get ready to finish and publish the second novel in the trilogy, Pride’s Children: NETHERWORLD.

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Setting fiction in worlds with calendars and clocks

GOING TO ABSURD LENGTHS TO MAKE TIMES AND DATES WORK

There are two parts to verisimilitude: characters and plots.

When you graft a fictional character onto a world in a historical context – changing the name of the president, for example (still missing President Bartlett of the West Wing, not so much the Presidents Underwood of House of Cards), is a perfectly reasonable thing to do, because FICTION.

But there is a significant difference between an alternate history – one which answers what if? questions about what would happen if something changed due to that fictional occurrence (President Lincoln survived the Civil War) – and one which aims to change only a few features of an event, without completely changing the chronology of what happens after.

Because, within wide parameters, most people aren’t important enough to change history, and writing things a little different to end a personal story in a particular way is a perfectly valid fictional technique: you don’t imagine the 1950s differently, but your sleuth solves cases in them.

My fictional world is the real world

I want you to think, when you finish reading my WIP, that you’ve read something that really happened.

But because I chose Hollywood (and Bollywood added to it in the second volume of the trilogy), I need a worldwide stage for some parts, which has resulted in characters at times in very different time zones being aware of or communicating with each other.

Or traveling from one place to another and back.

Or of something they do affecting a different character somewhere else.

Stories aim to give you the flavor of reality

Stories – even very long dense epic stories – give you only a tiny part of what ‘happened.’

Try to document your day. In just one 24-hour day, you perform thousands of actions, make hundreds of decisions. Even listing them in a recording as you go through the day would take forever.

So the writer in a novel has to give you enough of the right kind of scenes so that you think you’ve lived with the characters – but are actually seeing a tiny fraction of what real people would do in that time.

The RIGHT tiny fraction. To give an illusion of time passing and being present.

The writer has to know a lot more than the reader

Or readers will notice the gaps. Call them plot holes, inconsistencies, anachronisms. Or my favorite: refrigerator moments. Because you’re at the refrigerator at 3am and suddenly it occurs to you that there was no logical reason for something that happened in the plot, but you were swept away by the action, and didn’t notice. It may have been Lawrence Block who mentioned no reason for the Estonians to be eating chocolate chip cookies (my memory is very vague on the topic).

Well, I don’t want any of those.

I don’t want readers to say, “Wait a minute – that couldn’t happen!” Because it would pop the ‘suspension of disbelief bubble, and damage the flow.

So I go to a lot of trouble to make sure something might have happened that way.

MOST readers will never notice the hole, or if they do, care.

Funny thing: in my mind, that doesn’t absolve me of the requirement to make sure there aren’t any I can see.

In practical terms in NETHERWORLD

It means that when I do my complicated alternation between characters, and something has to happen on a close timeline, I spend effort making sure that timeline is actually possible.

If two characters alternating are on different continents (a recent example), and there is a plane flight from one of those continents to a place on a third one, I use a lot of convenient time/date software (what time is it in Berlin when it’s 3am in Shanghai?) in coordination with other software which tells me how long the flight will be for a particular aircraft.

Sometimes I’ve had to reset the time for a particular sequential scene.

Other times I’ve had to start a scene earlier or later, build in a gap, or have it end at a different time.

The interesting thing to me has been that when I get that involved in the details of ‘could it work’, I find myself feeling more like a detective than the plotter of a novel.

I’m discovering what happened rather than creating it.

It has been eerie how real the timelines are – and how I’m able to fit the changes in without it rippling through the rest of the scenes.

Some scenes are anchored in REAL TIME

I’ve chosen to insert a character into an actual historical event, so I have to make sure a barrage of physical actions happen around that exact event.

I don’t want a reader to remember something – that year that award ceremony happened on a Monday, not the usual Sunday – and me have gotten it wrong.

It’s enough fiction that I’m putting my characters into that ceremony.

I want the reader to have the spine-chilling thought, “Hey. Wait. Am I remembering it wrong?” because my fictional part fits so well into the past reality.

And it’s not that many years ago.

Next time I may pick something without these real-world anchors!

Or in a fictional universe.

I never realized how much work it might be until I was up to my neck in alligators in the swamp.

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As a reader, what do you do when the glitches are so obvious you can’t ignore them?

As a writer, am I crazy to worry about these tiny details?

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Is labeling mainstream novels literary counterproductive?

A REVOLUTION HAPPENED AND NOBODY NOTICED

Amazon tries; it really does.

To satisfy its customers, to make searching for what they want easy (easier), to supply it efficiently.

By revolution I mean both also that things turned around – 180° – from where they were, sort of, before.

Because before this all happened, ‘literary’ was a separate category in bookstores.

And literary meant a number of things:

  • Difficult to read, requiring great attention
  • Small in scope – One DAY in the life of Ivan Denisovich
  • Elitist
  • Using difficult flowery language
  • Very detailed – a navel closely observed and described
  • Slow and languid
  • Somehow not for everyone
  • Requiring a large SAT vocabulary
  • For people with an MA in English or Literature
  • Suitable proof for a doctorate
  • A credential for teaching English or Literature
  • With a limited audience
  • Special
  • Art
  • Cliched
  • Maybe French or translated from Italian or Russian
  • Not commercial
  • Often not ending anywhere near happily

Add or subtract from my list what comes into your head when you hear ‘literary novel.’ Please feel free to mention them in a comment.

What’s the revolution, you ask?

That ‘literary’ now means ‘traditionally published good stuff’ on Amazon, and is seen as almost the exclusive purview of, you guessed it, the traditional publishers large and small.

The books that are vetted by agents and editors at publishing companies (excluding the celebrity stuff), and are therefore both ‘better’ and ‘not for the hoi polloi.’

The other similar term is ‘historical,’ which is a little fuzzier and often about WWII, sometimes about WWI or the American Civil War.

Because the term ‘mainstream’ disappeared, and is not the same as ‘contemporary,’ which can be attached to, say, a Romance and a worldview: ‘Contemporary Christian Romance’ is a searchable thing.

It is considered presumptuous to label your own work ‘classic.’

And ‘General Fiction’ is not a category, but a garbage can.

‘Psychological’ is filling the empty slot somewhat – almost all novels for grownups are psychological, but is confounded by ‘thriller,’ ‘horror’, and ‘women’s fiction.’ With, of course, nothing actually labeled ‘fiction for men.’

It used to be possible to find mainstream fiction by looking for ‘a novel’ on the cover. No more. It now means only ‘book of at least 50 pages.’

It doesn’t matter for mainstream because

I’m convinced readers of mainstream fiction who use Amazon come there to find a good price on something they’ve already decided to buy.

I don’t think they search on Amazon. Not beyond maybe being attracted by something similar being offered by the ‘also read’ bots. There is just too much stuff.

They get their recommendations elsewhere – book critics (who rarely do SPAs*), reviews in the few places which still have book sections (print journalism has taken a lot of hits lately, too), and the publicity material put out for their best-selling authors by the traditional publishers (other authors get bupkis from traditional publishers – return on investment isn’t worth it).

So the market is saturated and sopped up by the same few titles which keep those offices in Manhattan open for the publishers (and their unpaid interns).

I’m hoping for virality. It can make the huge difference to a start – and then the writing must maintain the quality so that future books, even if widely spaces, are eagerly awaited.

Feel free to help kick that off – if you like mainstream fiction.

Don’t let ‘the system’ keep producing same old, same old – and then complain you can’t find anything you like to read.

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Thank you for listening to the daily rant. Now, if I could just manage to do it daily! 🙂

Oh, and the answer to the title question is yes: ‘Literary’ has too many negative and restrictive connotations in the minds of too many readers.

‘Literary’ is not a good substitute for such terms as mainstream, ‘big book’, epic, blockbuster, or commercial novel. It isn’t the same. Even when the intent is to make it a synonym with ‘well written.’

IMNVHO (In my not very humble opinion,)

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Final note: Pride’s Children: PURGATORY is taking part today and for the next few days at a promotion at HelloBooks – which has many other wonderful bargains for serious readers of General Fiction (its category) and many other genres.

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*SPAs = self-published authors, sometimes known as indies or independent authors

When the WIP forces change on your writing style

I’VE BEEN STRUGGLING WITH A NEW CONUNDRUM

I didn’t expect to, not this late in the middle book of a trilogy.

I capture these thoughts when they happen, hoping to have something to refer to when it happens again.

The constraint here is both the calendar – the end is near, and the content until the last scene is what it has to be – and a sense of pace.

In the real world, things have their own importance, and can’t be hurried – or slowed. Their pace is what their pace is.

In fiction, however, technically every bit is under the immediate and complete control of the writer – nothing happens without her say so – and completely not. Why? Because the pace you work hard to develop as you go seems to have a built-in speed you didn’t put there.

I’m not used to this

All pantsers are familiar with this.

Whereas I, an extreme plotter, like to think I’m in control of everything.

The story takes over.

And you bumble around in the dark until you learn.

Oh, and try doing this with WRITER brain fog!

You can’t write chaos smoothly

But it can’t be completely chaotic stream-of-consciousness either, not for very long on the page: the Reader won’t stand for it.

So it’s a mixture, and, from deep third multiple pov, you have to credibly present a chaotic situation for a character you’ve already developed (starting that way in Chapter 1 or with a new character is a different ballgame), and who is usually much less confused.

So you will get a little indulgence from your audience, but don’t want to presume on that – or they’ll start skimming, and you’ve lost them.

Balance.

So, another skill attempted in the craft.

I wonder what the beta reader will say.

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If you’re a reader, do you notice this kind of thing? And how much patience do you have for a change in how you see characters, especially when they’re under stress?

If you’re a writer, has this one bitten your ankles?

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Economies of writer scale explained for readers

(2021’s last)

AMAZON IS MY PUBLISHER BUT…

I am Director of Marketing for Trilka Press, the imprint that publishes my books, and may some day publish other writers (don’t hold your breath quite yet).

I am the PR department, as well. All of it. And the Art Department. And IT. And Housekeeping and Bookkeeping and Landscaping and…

I am in charge of all financial decisions; we are still at the venture capital stage (me), so I’m VP of Finance.

All self-publishers are entrepreneurs by definition. We make all the decisions which affect us, except for those made by our printer and distributor (in my case, only Amazon – changing that will require work I don’t have time for now, but it’s on the very-long To Do list of the CEO and COO of Trilka Press (again, me)).

Advertising is solely my responsibility at the end of 2021

If I want to advertise (takes time and effort away from writing), I choose the venue (Amazon, FaceBook, and, in one horrible expensive decision years back, the PAW (the Princeton Alumni Weekly), which I was allowed to advertise in as a former staff member – circulation 90K prime potential readers – cost >$600, RoI = $0).

And I set up the ads. And pay for them. And fulfill all the requirements of timing – and due diligence. I should have asked PAW for some statistics – it turns out that particular advertising section, published twice a year, is filled with other self-publishers and some perennials, and is probably not a good place to peddle fiction by unknown authors who get a tiny number of words to hawk their wares. Duly noted.

So, like all of us, I spend some time managing promotion for myself (I know, sounds so tacky!). Or I’m depending on the kindness of strangers, which is erratic.

You get over it when you realize you want readers, readers in general have been conditioned to be wary of SPAs (self-published authors), and it’s up to you.

If you happen to be lucky, or go viral in some way, good.

Don’t count on it.

Even in the pushy real world, most overnight sensations have been at it for at least ten years. Or are connected. Or know something about somebody (just kidding!).

The power and control are heady – and scary!

Unlike many indies, I am not solely supported by my writing (a good thing!). But I also don’t want to write only for myself, at least not past this trilogy, because it is an incredible amount of work, takes all my available energy, and I worry about leaving fans hanging if something happens to me during the (very long) time it takes me to write something to my standards – and don’t want them to see how far below that I start.

Twenty-one years so far – and the final book will consume at least my next five years.

This little win I just received – the lovely and letter-perfect review from Jennifer Jackson at Indies Today – showed me how much encouragement affects my ability to focus. Duly noted again – but it’s not the kind of thing you can say, even to friends: “Please tell me something nice about my writing.”

I do my part for other writers, and they have been wonderful, but modesty and not-bragging were ingrained in my generation by our parents, whose generation fought WWII, and had their priorities pretty straight by the end of it, in many ways. Did they overdo it? Probably. All parents do, no matter how perfect we think we are.

But I digress…

I generally avoid low-price sales

How can conditioning people to expect something for almost nothing be a functional business model?

Someone commented recently that most free or 0.99 downloaded books are NEVER read.

The exception is the books which somehow get read, and make the reader a fan who then purchases or borrows from library or streaming service the author’s other books.

And up until now I didn’t have other books.

The exceptions I can live with include:

  • Sales to raise a book’s rank (for Search Engines)
  • Sales to promote a series which already exists
  • Sales to promote a launch
  • Sales to capture any remaining market for a bestseller already out a while
  • Or sales to take advantage of a blip

In other words, sales which have an expected (or hoped for) return on investment. That investment can be considerable, and the return is not guaranteed, but, for example, most writers mention in writing groups (self-selected) that they’re happy with BookBub deals and get a significant bump from them. ‘Loss leader’ I believe the marketing folk call it. BookBub doesn’t lose, authors who don’t do well hope maybe next time, and readers get bargains or freebies.

I’ve noticed Netflix keeps raising its prices. Because ‘give stuff away free’ is not sustainable. And Amazon and Facebook make money from the ads. But authors who don’t get that boost might be subsidizing the whole experiment.

Anyhoo – moving right along – BUY!

If you have a business reason for a sale, you will eventually learn which ones work.

Amazon is being very efficient these days: the $0.99 price took less than an hour to show up today, so THE 0.99 E-BOOK SALE is on. At least until four days after January 14, 2022, when my first Hello Books promotion will be over. The price will then return to $9.99.

PLEASE take advantage of the timing – I am hoping for a bump in ranking which might help later, and followers who might be interested in NETHERWORLD.

If you go to PURGATORY‘s page, I would appreciate it if you scroll down to the Editorial Reviews and tell me what you think of the new version – I modeled it on The Goldfinch‘s ER, and Amazon was very responsive as I worked on changes – an hour or so instead of their published ‘3 to 5 business days.’ Much appreciated, because it is almost impossible to get those things right the first time, and it took me three iterations.

The probability of a lower price is minuscule – I think ‘FREE’ doesn’t work for my kind of author and book.

[NOTE: The paperback is not on sale any more (Amazon was playing with it).]

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Really looking forward to your comments – readers and writers. How does any of the above reflect your experience?

And if you are interested in NETHERWORLD, but haven’t popped over to the books’ site to Follow it, now is a good time to guarantee you hear about things like sales.

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One way to encourage a writer

When you are reaching the end of writing a novel, it looks as if you’ll never finish.

Encouragement comes in odd places:

  • a reader wanting to know when the next one is out
  • sales you didn’t expect, didn’t advertise for
  • the writing going particularly well
  • a tough section written
  • and a review that blows your metaphorical socks off (one gets so jaded).

This morning, my inbox contained a link to that kind of review, and I encourage those who are here for the fiction to take a quick look at the books’ sister site, Pride’s Children . com, and sign up there if they haven’t – because NETHERWORLD will be here early next year, and that encouragement keeps me focused.

An encouraged and supported writer (thanks to all my visitors and commenters and fellow bloggers and friends from FB and GR – you know who you are, and I hope you know how important you are) is a happy writer, and is probably writing much better than a discouraged one.

I don’t buy the drugs-and-alcohol motivated writer narrative (one reason being because my body doesn’t process alcohol fast enough and I don’t tolerate most meds), so I have to go on HAPPINESS, the universal salve.

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Sleep and lowered stress would be nice, too, and research to treat and cure this dratted disease (ME/CFS). I’m doing the best that I can.

Reduced brain fog would be ideal.

I’m doing the best that I can.

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Traveling with a nonstandard mobility device

An Airwheel S8 is a mobility device

THE BIGGEST ADVENTURE IN THREE YEARS

I haven’t posted for a while for a very important reason: traveling to the Boulder area for our son’s and daughter-in-law’s wedding reception. (I am recovering slowly from the trip, and am finding my writing very much more basic this week – bear with me.)

The wedding was a lovely Zoom event a year ago – it wasn’t deemed safe to have it in person before vaccines in the middle of a pandemic – and under Colorado law, the kids could do the actual wedding themselves by signing a form. They chose to do that, and did a wonderful job of vows with a backpacking theme – talking about how and why they packed the items for a trip.

This year, vaccinated and safer, the wedding reception took place in a venue with the Boulder mountains in the background, family and friends from all over present.

The ceremony was out on the grass in the setting sun – I made it to a seat somehow, and was misty-eyed at the very personal and heartfelt words. Big smiles by everyone. They make a great couple, and have been together a long time now.

So we had to get there

Our son had asked if I wanted a mother/son dance after his wife’s father/daughter dance and theirs as a couple, and I said yes.

I can’t stand very long, or walk very far, and am extremely awkward and unstable on my feet.

So of course I said yes – these things are important, and don’t happen very often.

If at all possible, you do them, because regret is the cost of not trying.

We didn’t have time or occasion to practice before, so it was a one-time event.

My secret weapon was Maggie

Maggie (for the magnesium alloy she’s made from, and the maglev motors that run her) is my Emotional Support Robot Mini Riding Horse – and my bionic legs – and my mobility device.

An Airwheel S8, she is a bicycle seat on a hoverboard. We are a proud member of a subgroup on the Electric Unicycle Forum (even though she has two wheels).

She can be used sitting or standing, lasts a long time and distance on one charge, and I use her around the retirement community inside (elevators and long carpeted halls) and outside (on the Davis greenway, sidewalks, and bike paths). I don’t stand – but the kids and others have tried that without problems.

The trick was getting Maggie there and back – on a plane

Without damage.

To Denver International Airport and back to Sacramento.

I follow John Morris’s Wheelchair Travel blog, and knew this wasn’t going to be simple.

Why? For a bunch of reasons:

  • Maggie is not a wheelchair nor a scooter, devices most people are more familiar with as mobility devices.
  • Maggie is electric.
  • Maggie has lithium batteries built in.
  • The batteries cannot be removed – the procedure for replacing one is long and involved.
  • Most devices travel in the cargo hold with the luggage, including my walker of many years, Sylvia.
  • Most people have never seen an Airwheel S8 (I am a ham; I do demos at the drop of a hat, and talk about my mobility device to anyone who evinces the most minor interest).

My greatest fear was showing up at the airport in Sacramento

and having a particular crew (the pilot’s word is final) or counter staff refuse to take her on the plane at all.

The next biggest were having my mobility device damaged during the trip, refused passage on the way back, or become lost baggage. My very sturdy walker has been affected by the many trips she’s been on, and the bracket I put on the front to hold a basket was broken off on a trip long ago. I breathe a sigh of relief every time the walker shows up again while deboarding.

If Maggie stops working (it has happened – this is my second Maggie), she becomes a 32 lb awkwardly shaped piece of metal and plastics that barely rolls.

There have been a number of incidents with cheap lithium batteries causing fires on planes and in other places, so I understand their concern – in principle. But electric wheelchairs travel all the time.

If absolutely necessary, I would have dragged myself all over the wedding venues with my walker. But what would happen to Maggie if I couldn’t take her with me was a big concern, because airports are not a place you can store things and time would be limited (as well as my energy, which is my constant battle to preserve).

Preparation before hand was key

I spent a lot of time a couple weeks prior to the trip (over an hour on the phone) talking to the person the Accessibility phone at the airline had at the other end. We sort of figure out that it would probably work. This person said a ‘note’ would be placed in my file for the trip.

A few days before the trip, I got anxious. I went to my reservation to see if the note said what it was supposed to say. There was no note. The only codes were the ones I had written into the form when buying the tickets – informing the airline that I needed a wheelchair in the airports, and that I can walk enough (hanging onto seatbacks) to get to my seat, so I wouldn’t require the on-board airline wheelchair to get to my seat.

Nothing about Maggie, nonstandard devices, batteries… all the things we discussed. Nothing I could mention to a gate person or counter person.

So I called again – and this time got someone who said she was Accessibility – and didn’t recognize the name of the other person! At the same phone number. Not a good start.

The second person was much more helpful for a specific reason: with a little searching, and knowing the airline website, she was able to find the specific wording which would let me take Maggie onboard, either in the wheelchair closet or in the cargo. I printed it all out, highlighted the relevant sections, and brought it with me.

I didn’t need to use it – but it could have gone the other way.

The airport trip was easier because I have an Assistant again

She was available to drive us and our luggage to the airport when we needed it. And she promised to bring Maggie home if something went wrong and my mobility device wasn’t allowed on the plane. Fortunately, I didn’t end up needing to call her back.

Sacramento was an easy airport to navigate: it was agreed I would use Maggie to get through TSA, and all the way to the gate, where the final decision cabin/cargo hold would be made – by the crew/pilot.

So far so good – and then, at the crowded gate (we were plenty early), the gate person told me the crew said there was no room on board for my device.

First big hurdle

The crew person who came out said there was no room. But I was allowed to go down the ramp to the plane on Maggie.

And at the door, I asked to be allowed to see the closet.

At this point I’m sort of holding up boarding (btw, disabled people are supposed to board before ANYONE, including First Class passengers, VIPs, people with small children – a right more honored in the breach than in the observance), so they let me on (I’m hanging onto anything I can at this point, with Maggie about to go down to the cargo hold), and I see that the only reason they won’t put here there is because it has a bunch of crew luggage.

So I state unaggressively but unambiguously that my wheelchair device has priority over crew luggage. I may have asked if they wanted to see the printout of their website written information; I don’t remember – the counter people didn’t want to see it either.

At that moment one of the pilots stepped out, and asked if he could help. I explained, said Maggie could be picked up with one hand. The flight attendant removed the luggage, the pilot placed Maggie easily in the closet, and the hurdle was over. I am very grateful – but still shaking – as I make my way to my seat, hanging on to seatbacks. My husband dealt with the carry-on luggage, sending the walker to the cargo hold, and putting our other stuff in the overhead bin.

After landing there was a wheelchair waiting for me, so I pushed Maggie in front of me through the very large airport, down to baggage claim (on a train!), the attendant got us to the door, our youngest daughter was waiting in the cell phone parking lot with the car, and the hotel room was actually there (you can bet I had called, prepared them for late arrival, and reminded them I needed an accessible room – but the ride was still spent with me worrying). I made sure to tip the wheelchair attendant very well – he was very helpful and stayed until we were in the car.

The wedding festivities went well

Except for me having zero energy, and being totally wiped out most of the time, everything in Boulder allowed me to participate as much as I could, because our youngest daughter rented a car and did the driving, all of it, and we fit.

At the actual reception venue (not designed at all for disabled people), I either used Maggie as a live cane (she is very stable that way, if a bit too short), or people carried her in for me and I grabbed whatever I could for support, and we managed.

The mother/son dance went incredibly well – I assayed a twirl at the very beginning, and it worked beautifully, so we did a bunch more, and it was really great to dance for the first time in years. I’m hoping someone has video!

The return trip was fraught

for a bunch of reasons, including Denver having a huge number of visitors leaving over the weekend (we were grateful our flight was on Monday).

We got there early. The counter help person took a snapshot, and texted the request for the on-board cabin to the gate. First step accomplished.

But when we navigated the busy airport and TSA and train with another wheelchair attendant, and got to the gate early – there was no one there, and the food venues didn’t have anything I could eat. I ate an Atkins bar, and prepared to wait.

When the gate person showed up, it was a repeat of the first boarding, with none of these people having seen my device (usual), or the form passengers are supposed to supply to go with their device to the hold (they said they had NEVER seen one – it’s on the website), and they started telling me the closet was too small.

Again, very unaggressively, I explained that Federal regulations require a certain size closet, and that Maggie was smaller than those dimensions. They came back with saying that there are many different aircraft, and not all have the closet (even if they have the number of seats that require the closet – 100), and that they didn’t think the closet door was wide enough.

It all felt as if they were trying to prepare me to be disappointed. At this point I’m completely wiped out by the trip, the wedding, the problems at the hotel (the only accessible feature I needed was a shower seat – and it turned out to be coming off the wall!), the physical and mental gymnastics required to be a disabled person in an able world.

Back to me

I managed to pretend to be positive. To do my little demo of how well Maggie serves me. To be polite and chatty with the gate person, the flight attendant who basically told me it probably wouldn’t happen but they were working on it and that the door was too narrow, and the pilot who came out and said all the same things, but that they were going to try.

This time I was allowed to be the first person down the ramp.

When I got there, I was prepared for failure, but of course the closet door was plenty wide (they have to be able to fit a passenger’s folded manual wheelchair into that space), the on-board aisle wheelchair was there, in the closet, and completely folded out of the way – and Maggie went in sideways through the door with space to spare.

I dragged myself to my seat, shaking again, and somehow survived the flight home, the wheelchair from the plane pushing Maggie in front of me, baggage claim, and was lucky enough to have the Lyft driver I arranged for as soon as we were at baggage claim and the suitcases were coming out arrive in three minutes, manage to load all out stuff, and get us home.

Feedback to the airline

Five days later I found the energy to fill out their survey.

I hate those things. They want you to check all kinds of points worded so only a horrible person would complain – but I put enough into the text boxes where allowed to give them a picture of what happened, to say everyone was very nice (they were – even when saying no a lot), and suggested that more on disabled passengers, wheelchairs, the on-board closet, and nonstandard devices should be done in training (knowing they all get periodic passes through it), and submitted. I doubt it will do any good, but you never know – I’ve done what I could.

My husband submitted his version – and he is a very supportive man, and didn’t step in and take over at any point (much appreciated) who knows exactly what I go through – he had some extra comments, again, very polite – and we’ve both done what we can with their awkward survey.

The future – I plan to travel more, and Maggie is an essential part

I hope this post gets shared (and I will ask John Morris if he wants a version for his site) because other people need to be prepared.

It was a constant obstacle course. Things are designed for able-bodied people. Any one of several hundred points on the track could have been the sticking point. Everything that eventually worked could have failed. I am grateful to have gotten there and back – and still exhausted.

Everything takes more energy and time when you are disabled – and you have far less energy than everyone else. Not fair, but it is what it is.

I saw no one else in their own wheelchair in either airport. That was surprising.

I’m sure the system is so daunting most physically disabled people just don’t try it most of the time. The mental strain is significant – and I can see how hard this would have been on someone less coherent than I was (and I was not doing well), or with other problems processing crowds, noise, and roadblocks.

I thought a wheelchair attendant was the key to getting through TSA efficiently (I cannot imagine what shape I would be in after standing in line – sitting on Maggie for any length of time is not great, especially if we aren’t moving), but it isn’t, and I think, after pushing Maggie, live, in front of me through corridors, trains, and elevators, it would be easier if I just rode her, while pushing the walker in front of me. But the attendant was critical in dealing with luggage, saved some of my energy, knew exactly where to go, and would have been helpful had anything gone wrong. Six of one, half a dozen of the other – and tip money very well spent. And an extra pair of hands is nothing to be sneezed at.

But most of all, I am incredibly grateful for those who

have fought all the previous battles:

  • Making sure there is an on-board closet
  • Making sure there is a wheelchair that fits in their aisle to get a passenger who can’t walk to their seat
  • Creating the Americans with Disabilities Act and its protections
  • Creating the Air Carrier Access Act (ACAA), [which] prohibits discrimination in airline service on the basis of disability – and all its protections
  • for other bloggers like John who write about the joys and perils
  • and who provide feedback constantly on how air travel meets or falls short of these ideals for every day travelers.

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Please excuse my lack of editing this down into something shorter and more pithy – I am still not recovered, and this feels below my standards in many ways, but if I don’t get it all down now, much will lose its immediacy.

Please feel free to pass this on.

Please contribute your own thoughts and experiences and suggestions.

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Is your book optimistic or pessimistic?

Or over-engineered?

WHAT IS YOUR DEFAULT POSITION AS A WRITER?

Why do we read?

To learn about the world and to learn about our potentialities as humans.

Really.

To read a book is to live part of another life.

Optimist or pessimist is a question I ask books.

Is your book ultimately depressing or uplifting?

Even horrible books can raise spirits, especially by the end of the book. The Diary of Anne Frank does that.

It’s a value judgment.

Doing some research, I spent time reading the Top Reviews for Karin Slaughter’s Pretty Girls (2016).

Top reviewers are the ones who get the most comments or upvotes; the first four pages had negative after negative review (it wasn’t until page 4 that I found two short positive reviews, from readers), many of those from reviewers you would love to get to read your book: Top 500, Top 1000, Vine Voice…

And those reviewers were appalled at the violence against women that was graphically depicted, over and over. ‘Gratuitous’ was used as a descriptor.

Many commented that the writing was good or adequate or competent (workmanlike would have been my assessment, from reading the Look Inside sample provided), but that the choice of subject matter left them sick to their stomach.

A depressing book – depressing author?

Ms. Slaughter is a NYT bestseller.

Apparently, previous books she wrote were not nearly as negative as this one; many of these reviewers commented they would not read another of her books.

Some commented they wished they could scrub their minds of the images, for which they could find no socially redeeming reasons.

Me, I wondered why they continued reading, even if they skimmed.

The optimistic book – optimistic authors?

SF can be pessimistic (dystopias) or optimistic.

Romance is usually optimistic, and those fans who like to read Romance want their ‘happily ever after’ (HEA) ending, and can be very unhappy with writers who don’t provide one. There is a subset of books which end, not with an HEA, but with a ‘happy for now’ (HFN). These books are still hopeful, but possibly more realistic – and also possibly open to sequels.

Thrillers and mysteries can be all over the map – but do deal with the grittier side of life, and more often are pessimistic or neutral, but possibly with an optimistic undertone, say, to a continuing detective’s life.

A special category is the detective who finds happiness

My favorite, obviously, is the definitely HEA ending of Dorothy L. Sayers’ Lord Peter Wimsey novels, ending with Busman’s Honeymoon, where Peter and Harriet marry, finally, and solve one last real mystery which sets the tone for their married life. Sayers wrote only two short stories about the pair after that, even though her series was popular and is still popular now.

During all the novels, there was still an optimistic cast to the series: there was a right and wrong, people had principles, and there were consequences – but mysteries were solved and things set ‘right’ where possible. Sayers went on to write theology, so her stories were optimistic because she believed in the possibility.

Jane Eyre is optimistic. Silas Marner is optimistic.

Huckleberry Finn is optimistic. The Moon is a Harsh Mistress (Heinlein) is optimistic.

You write what you like

And I don’t like ultimately pessimistic books.

Almost every genre can be written either way; even serial killer Dexter is optimistic.

I just want to know that, at the end of the book, things are, or have the potential of being, better.

That covers a lot of territory, but the thing in a book that makes me pick another book by an author is that there was hope at the end.

So if you read what I write, you will be reassured that, whether you like exactly how I have arranged things to happen, there will be an upbeat end.

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Are you an optimist or a pessimist?

And does it show in what you read and/or write?

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Absolute right to tell doctor NO

DOES NOT APPLY TO PUBLIC HEALTH EMERGENCIES

YOUR BODY, YOUR LIFE

Even if you’re wrong.

I had a surgeon, the other day, refuse to do a minor procedure – WITHOUT EVEN MEETING ME – after talking to the nurse practitioner who examined me, because their ‘guidelines’ stated another procedure HAD TO BE DONE FIRST to rule something out.

Now before anyone gets all worried, it is a minor procedure which would improve my life significantly.

I didn’t say no – I asked for statistics.

Was told they had guidelines.

It is my very real experience in previous cases that ‘guidelines’ are often years out of date, because, as one doctor told me, “It takes time for the research to be incorporated into the guidelines.” Lots of time. A decade and a half in the previous case.

But even that is a red herring

I don’t know what the statistics are in this case, but I’m guessing MOST of the ruling-out procedures are unnecessary. As in, don’t discover anything that needs being attended to in the majority of cases.

In the case of normal reasonably-healthy people, going through a ruling-out procedure is a minor inconvenience, the loss of a day or two of their time, and an allowable use of their medical leave (if they’re working).

FOR DISABLED PEOPLE WITH NO ENERGY, EVERY procedure

carries risks and an amazingly high load of days lost and physical inconvenience, minor and major misery, time, calling in of favors, arranging…

You name it.

And it is very reasonable to 1) ask if something is STRICTLY necessary, and 2) supported by research and statistics which show the procedure is worth the enormous effort it costs that disabled person.

If a restaurant meal is $50 for one person, and $50,000 for another, it is reasonable to ask first whether the second person wishes to pay that much (this is what prices on menus are for, among other things).

Not taking that into account in medical procedures is the equivalent of saying, “If you have to ask, you can’t afford it.”

So you can’t eat it, even if you’re hungry.

The ADA Factsheet states:

The ADA requires that health care entities provide full and equal access for people with disabilities.


This can be done through:

  • Reasonable Modifications of Policies, Practices, and Procedures. Adjusting policies, practices, and procedures, if needed, to provide goods, services, facilities, privileges, advantages, or accommodations.

At the end of the fact sheet there is a feedback form. Where it asks Is the information useful to you? I checked NO.

Where asked How could the usefulness be improved? I answered:

“Reasonable modifications (or changes) to policies, practices, and procedures” does not address RECOMMENDED procedures used to RULE OUT a possibility, when it isn’t a strict requirement, would be much more difficult for the disabled person to satisfy than for a normal healthy person, and is not wanted by the disabled patient – who understands but does not consent to the recommended procedure, and is thus prevented from having a service they DO need and want.

Where asked What are the most important changes we could make? I answered:

Directly address the fact that, for disabled people, things can be MUCH more difficult to do because of the disability itself (which in my case includes very little energy in a day), and it is not fair to insist they meet the same RECOMMENDED but not STRICTLY NECESSARY requirements an able person is presented with.

And where asked What other factsheets do you think we should write? I answered:

How to lower the barriers which prevent a disabled person from getting a necessary service/procedure when these barriers are ONEROUS to a disabled person compared with an able person.

Do I expect any help from the ADA people?

Not really.

The wheels of government move slowly in the best of cases, and there will be pushback and talk about ‘lowering standards’ and interfering with ‘recommendations by doctors and medical societies.’

And, more ominously, ‘disabled people not knowing what is good for them.’

Change would likely take longer than it does to update those guidelines they are so fond of, produced by a medical society, 15 years after the research changes, to CYA those who might be sued if they don’t follow ‘standard procedures.’

I’m pretty sure they were not thinking about the EFFECT of the above on a disabled person with limited capacity – just imagining what it would be like for a person like themselves (rarely disabled) to go through the procedure, say, with an emotional support miniature horse (yes, they are specifically included, but might be excluded if not housebroken).

I’m furious because there is no recourse

This is the only version of the medical procedure I need within my medical services system.

It takes me a lot of energy to even write about it here; the actual recommended but not in my estimation strictly necessary pre-requisite to the procedure I need is one that would take over a week of ALL my time and energy to do – and I’m not sure I could manage its requirements anyway.

Finding an alternate to their clinic is beyond my capabilities.

The minor procedure would improve my life immediately but isn’t going to happen.

And I don’t think I’m going to get anywhere with the ‘feedback request’ from my medical providers – thought I may just send them this post.

As the disabled person

I should not have to fight over things like this, but should be asked my preference without having to go through the stress of fighting the surgeon who hasn’t even met me.

I have wasted enough time and energy on this already.

I hope I can continue to manage the problem.

And I wonder exactly what they think ‘informed consent‘ means when I do NOT consent.

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And, if you’re worried, I’m not taking stupid chances – I’m not planning on dying of something preventable.

Why do disabled people have to fight so hard for stupidities like this?

Why isn’t the able world asking how to help?

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