Monthly Archives: October 2019

Trike ride is different in California Fall

One bright red tree on a background of green and dun vegetation.

A LONE TREE DECIDES IT’S FALL IN CALIFORNIA

Stating the obvious: if the weather is ‘rideable’ all year round, things are different.

Our other constraint is dinner: from 4:45 to 7, and 6:30 on Sundays.

So if we’re going to have dinner in the dining room, the only option on Sundays, we’re missing the natural late-afternoon slot for a bike ride.

Today the spousal unit got us takeout from the dining room, and I realized that I had a chance to go out for about an hour instead of dinner, as sunset is at 6:22 today. And the temperature was down from the 80s to a more sedate 73°, which is not too hot for me, so I MOVED.

The advantage to having been here for a while is that I have a go-bag for each activity, and can be out the door with my bike helmet or my bathing suit or my singing books in about 5-10 minutes. From starting in my pjs (which I wear most of the time while writing – or fooling around on the computer) to out the door, with another 5 min. to get to where I’m going – south garage for the trike, pool, piano lounge…

I realized I hadn’t ridden the machine I actually pedal for almost a week – instead of having few opportunities for getting outside because of the energy/temperature/humidity limits my body demands, I have far more than I can afford to take advantage of.

So out we went, Trixie the trike and I

Sylvia, my long-suffering walker, got me and the backpack and all my biking junk down to the garage, scooting backward. And over to where Trixie is waiting for an outing.

The hardest part of the ride is always getting out of the garage (uphill both ways), and today no handy car came along to open the garage door, so I did it from a dead stop. Because I have to stop, losing all momentum, to push the button to open the garage door.

I think I’m getting better at the process – all these little heuristics: go as far as I can from the bottom one way; then, before it gets too steep and I can’t pedal uphill any more, turn the opposite way, go down to the bottom of the hill, pedaling like crazy, and I’ll go farther up the other side.

Sometimes that’s enough; other times I repeat until I can get to the top of the hill on either side.

And when we got to one of the side gates off the property, someone was coming in and held the door – easy out for me. New person, here two days. Introduced myself and promised to talk later.

We went out to the West Pond

which at this time of the year is a dry creek bed.

Everything is still quite green, even though the rains of California winter haven’t come yet, but the contrast was stark with the tree above (photo doesn’t do it justice) – which had decided to go full-on scarlet. So got its picture taken – before the leave drop off.

Birdies settling in for the evening, kids and dogs and dads and moms and footballs still enjoying the perfect temperature – down the greenway at Arroyo Park next to the public pool and one of the schools.

They’ve added a new parcour course to the park, if that’s the correct name (you move from station to station along the paths doing different exercises).

Not up to that yet – may never be, as the distance back to URC is enough to make me worry about keeping some energy available to get home with. Maybe some day. A station at a time. For few reps.

How does this fit in with being ill?

It irks me that all this is available – and I don’t have the energy to get everything we’re paying for – but I knew that coming in.

If they find a cure for ME/CFS soon, maybe I’ll still be able to get into shape and do more – but they need to get a move on.

Meanwhile, I do what I can.

And the psychological lift from being able to get out of the apartment and off the property with the trike or Airwheel is priceless. I was starting to get cabin fever.

Tomorrow, I’ll hurt. And the energy won’t be there, and I may not be able to write – but not getting out except in the van to church or the doctor’s office is worse.

Peace out!


Get your flu shot – I rode Maggie to the doctor’s office a week ago and got mine.


 

 

You’ll never guess what I’ve done

Alicia sitting on an Airwheel S8 (a bicycle seat on a platform with gyroscope stabilization)

ALICIA SITTING ON MAGGIE, MY AIRWHEEL S8

Start with the obvious: what the heck is that?

Her name is Maggie because she is made from a magnesium alloy.

Conceptually, think of  a ‘seated Segway-type device’, and imagine me zooming around the Davis greenway this afternoon, just to get out of the house.

In addition, I have Trixie, my adult trike:

img 0797

with her basket:

img 0798

for days when I have energy for exercise (and don’t even want to think about plugging her into an outlet).

And lastly, I have my trusted Sylvia (Who is Sylvia?), my Invacare walker (no pic).

These are the devices that I use to get around our new home (University Retirement Community at Davis, California).

Maggie requires the least energy from me.

Here’s the picture of one of her siblings (from an ad):

Airwheel S8

I bought her on Ebay for around $500. There are more, but I have the feeling they may be produced at the factory in batches. I got the two-year Ebay Fair Trade Warranty, which I hope never to have to use, and joined the Electric Unicycle Forum, so I have a place to ask questions (Maggie is in one of the subcategories). These devices are powered by electric motors, and gyroscope stabilized.

How did you find Maggie?

Starting over three years ago, I googled ‘seated Segway.’ Segway doesn’t make one, but I can’t stand for very long, and need the seat.

Also, I have very little energy, and I try to use it for my writing (you all remember my writing, right?).

I watched videos on Youtube, with my favorite being this. It is short (23 seconds) and so cool. I wanted to be her.

Then I checked Ebay, and found several vendors offering the Airwheel S8.

The rest has simply been convincing myself that I could do this. That it wasn’t the craziest thing someone my age (late 60s when I started looking) could even consider. That I should try it quietly riding around the corridors late at night (the corridors even have hand-rails – I haven’t needed one once).

Why?

But I knew I needed something like this because this community of around 350 people are mostly in four floors of a single building, and the halls are very long to get to places.

I can’t do so many things because I don’t have the energy to get to the rooms where they happen. Even going down to dinner was painful and energy-sucking; I did a lot of it scooting backward while sitting on the walker’s seat, looking over my shoulder.

I want to remain INDEPENDENT as long as I possibly can. I don’t have the energy to push myself in a manual wheelchair.

And I am simply not psychologically ready for a powered wheelchair or scooter (besides which, they occupy a lot of space, both in halls and when parked).

But what if you fall on your face? Won’t you look foolish?

Ayup.

The thing that surprised me the most was how easy it was.

Charge Maggie up (3 hours max). Push the red button on the base. Push the red button on the remote – and she comes to life; beep! Sit on the saddle; beep! Put one foot on the base, dare lift the other foot onto the other side of the base.

Ride into the living room and startle the husband. Go out and try it in the hallways. Done. Go home and wonder if maybe watching the Youtube videos taught me subliminally – or it really is just that easy. Ayup.

Show people in small quantities.

Within a week all pretense is over, and I’m showing off every chance I get – haven’t been this cool and the center of attention in decades.

Do you have to balance?

Not much. It’s as if you were sitting on a bicycle seat on a post on the ground. Maggie does the stabilizing by reading your slight tilt, and feeding power to the wheels to follow your commands: slight lean forward or backward to go (move toward neutral position to stop), press on the seat with your inner thigh to twirl.

I am far more stable on Maggie than on my own two feet. Irritating, but I have no choice – the nerves to the muscles on the back of my legs are damaged, and only transmit a small amount of my instructions. On Maggie I can literally just sit there, not moving at all.

Going for a ride

The hardest movement (gulp) was the first time I was faced with a downward slope. A tiny downward slope. I held onto Maggie and walked down it. The next bit was an upward slope, so I tried that sitting – rock solid moving slowly up the slope. The next downward one (gulp) I just rode down, just as stably. Huh. Within ten minutes I was doing the slope up and down to the underground garage.

Since then, curb cuts. The bumpy things they put there for blind people to sense (way too bumpy, if you ask me – poor blind people!). Driveways. Speed bumps!

The biggest danger is cracks in the sidewalks and between cement sections of sidewalks and streets – anything uneven. Maggie scoots over them while I hold my breath the first time. The asphalt paths around here have deep fissures, so I do have to watch where I’m going.

Inside, I come to almost a complete stop at corridor intersections – don’t want to knock any of my fellow residents down.

Enough for now

Many more things have been occupying my time, and I’ll post about some of them (sorry it’s been so very long since I blogged).

Adjusting to the LDN (low-dose naltrexone) has been tricky. Adjusting to the social life has been time-consuming.

But I’m finally writing consistently again (my beta reader thinks I haven’t lost my touch), have some control over where the energy is spent (we’ve used the pools a lot in the hot weather), and, as the dining room manager said tonight, “You seem much happier since you got Maggie.”

Happiness it is. I had a crazy idea to save my energy – AND IT WORKS!

Now all I have to do is reconstitute some of my singing options from New Jersey, here at URC, and I’m set in a good place.

Husband admitted tonight that he’s proud of me – and seems to enjoy explaining Maggie to the masses.

Stay tuned. Questions welcome – I’m turning into such a ham: I stop, demonstrate, and talk about Maggie anytime someone smiles!


Pride’s Children NETHERWORLD is proceeding. Prepare by reading PURGATORY – I haven’t had ten seconds for marketing, and the readers have been commensurately few. If you like it, please recommend me to your friends.

And I’m working on getting the Prequel short story TOO LATE published.