Category Archives: CFS – living and writing with ME/CFS/CFIDS

Coping with the experience of having life options limited; methods of managing time, energy, brain fog, and pain; how it has changed me.

The major stressor and the Gordian knot


Things get tied in knots; sometimes the only solution to a bad marriage is a divorce. But that applies in other situations:

Teacher/student – this teacher has it in for your kid, for whatever reason, and the only way the kid will survive is switching to a different teacher, or a different school.

Parent/child – the child must leave home to get away from a controlling parent OR the parent must eject the nestling which has turned into a cuckoo bird and is eating the family out of house and home.

Boss/employee – leave that job, if you can, before it eats your soul; fire that employee before she sets the factory on fire.

And one I’ve done once before, in many years in the system: if the main stressor in your life is a particular doctor, switch before they stress you into the heart attack they think they’re protecting you from.

The signs were many.

Doctors have different outlooks on life, differing way of using ‘guidelines,’ different bedside manners.

Because change is so hard for me and others with ME/CFS (usually entails MORE doctor visits, transferring of many records, finding the new person, hoping you don’t have an emergency until you’re comfortable with the new one, getting them to read all your paperwork…), we often stay too long with one who ‘at least fills out the Social Security paperwork.’ I don’t need that any more – but worrying about blowing a gasket (ie, stroke) from an occasional blood pressure spike is a sure way to spend your life worrying about your pressure, which RAISES it.

I had reached the point of considering my home BP measuring device an additional stressor, and the taking of the BP another. But I have friends who have had strokes, and it ain’t pretty.

It reached the breaking point a month or so ago when something (I have an idea now, but no proof) led me to have a BP spike DURING my semi-annual cardiologist visit, in their office. ONE measurement. They refused to take it again (to see if it would be coming down), and instead went to full alert.

Full speed ahead, man the torpedoes!

To make a very long story short, after having an abysmal experience with – and stopping after ten pain-filled, zombie-brained, gut-wrenching (lit.) days – another BP med, I switched cardiologists – to the one I just saw (and had met during one of my hospital excursions and noted he was a breath of fresh air then).

He says, not only don’t worry about it, but don’t measure it! He realized the process had become stressful, but that my record of measurements didn’t show a real problem. He suggested, since I need salt to maintain blood volume, and don’t follow a low-salt cardiac diet, that I might have had too much some night (yes, yes, yes! very possible – when I add salt to the occasional popcorn or nuts!). NO ONE had ever told me it could set off a spike.

He actually listened to my difficulties with tolerating meds, said I’d tried most of the first-line ones, and reacted badly, and that the next line of them would likely have even worse side-effects. But that he didn’t think I needed any.

I see him in six months, and the largest stressor on my list (death due to not taking the doctor-prescribed cardiac meds) vamoosed in a puff of smoke. Plus the secondary stress I was also ignoring: going to that office and that doctor. It’s subtle.

Changing was the right thing to do – and a serious object lesson: listen to your stress level. If a doctor constantly puts you on red alert, consider whether this is the best doctor for you. With the other one, I felt every time that I was defending myself from being put on medication I didn’t need.

Such a relief: I agree.

I should have listened. To myself. We’re not all alike; neither are they.

I was just worried the first one would prejudice the second one, and I would then have to go far afield to find… You can always stress yourself out.

And I learned that the salt I need may cause BP spikes. Good to know – will watch that more carefully.


Update on Pi day 2018: almost alive


Concerned about occasional blood pressure spikes, I asked the cardiologist to prescribe something with the fewest side effects possible, and was given a prescription for an angiotensin II receptor antagonist (ARB) called Diovan, which was filled with a generic called Valsartan – and I’ve again lost ten days of my life.

After I’ve had a horrible pain and zombie-brain time with it, I start getting more detailed with my research, and find out the Celebrex (my pain med and ONLY other prescription med, which I finally found after trying about thirty other things) and Valsartan (and not only other ARBs, but also ACE inhibitors and betablockers (my old pal from last year, metoprolol – which contributed to last year’s hell, and which I also won’t take again)) are contraindicated because each drug makes the other drug less effective.

I’m getting very annoyed at people who don’t check drug interactions.

Also, people like me, with ME/CFS, are often sensitive to even small doses of meds. Starting on a SMALL dose would make a lot more sense. Maybe they think it was a small dose. I don’t. Ask my husband about my pain-filled week+. I don’t like to spend a long period of time breathing through pain I can’t seem to get control over, while worrying about the extra load in painkillers and what they will do to me and my poor overloaded liver and kidneys.

Just generally annoyed – and farther behind – AGAIN. It gets tiring. And when they don’t even call back after a week after I reported side effects (they said they would), even more.

I halved the dose, then quartered it, then stopped. Five days later, I’m starting to regain control, and my mind worked last night for a couple of hours. Woo hoo!

And yes, I’m aware I’m two days late for Pi Day, and didn’t get any pie. Hope your life is more even-tempered.

And I’m still worried about those occasional spikes. But no med will help if I CAN’T TAKE IT!

The house where Pride’s Children was written


If God gives me life and brain, I will finish my epic love story, Pride’s Children, in a couple of years.

Sometimes place is important. One thinks of the Brontës writing in the rectory on the moors, and wonders if it was a cold and dismal place, or a warm and cheery one. Did they have one room they kept cozy and tended to congregate in? I could find some of my answers if I took the time to look.

Sometimes I think that Kary’s house, Sanctuary, is more real than my own. I have put more thought into how it should be.

We have lived in this house, only the second one we’ve ever owned, since March 5, 1981, which is a very long time in these moving times. We have been its only owners.

My children have known no other childhood home.

As I have become more home-bound, I have spent almost all my life in the south bedroom, with a window that opens to a quiet court ended by a cul-de-sac, where the kids all rode their tricycles and bicycles and drew in chalk on the pavement.

I insisted on this house – because the neighborhood had – and has – mature trees everywhere I look. With so many developments built on cornfields, and so many owners who don’t bother to plant a tree when they move in, the new developments have a raw look to them.

I dislike the American house which often shows its concrete foundation, stained by water and rust, like a dirty petticoat peeking out from under a lady’s skirt, long after it is built. As if we should all politely ignore all underwear hanging out. Bushes are planted – which never cover that bottom foot of dirty grey.

Ours has bushes to the ground.

Abandoning a home deliberately is something new for me. I love this one in some way, for its memories, but I’m still here, and the memories are all I have. Already. I don’t want to go start clearing the debris of the winter so the bulbs can come out – I’ve done that too many times; now it’s accompanied by the pain of sitting low, and the sleepless nights that come with the pain.

The kids come very rarely, and are not into dance lessons and Scouts any more, so there is nothing for them to do. They often take the train to NY, and spend the day having fun. Without me. One wanders up to Princeton for a good walk and a bunch of Pokemon Go sites. Without me. Or walks to a local park, ditto.

I face the stairs every day. Sometimes I have to go up in an undignified way. I don’t understand why that doesn’t bother other people a whole lot more than it does. If it were them, and me watching, I would have gotten us out of here years ago. No, I have no desire to stay here – with my sewing machine sitting unused in the little attic closet I turned into a sewing room. Because I have no reason to sew. No costume for Halloween, no dress for a prom. My own clothes, which I started making when I was 14, now come in the mail.

I want to make a new home

While I still can. While I can adjust to a new community. While I can meet new people and do new things with enjoyment.

I don’t even want most of our furniture. The dining room table takes a beating when you’re homeschooling three kids at it. Much of the kid furniture was IKEA, assembled on the spot and not really capable of being disassembled successfully. The nice bedroom set, with the light bridge, is too big. The solid oak kitchen table, carefully hand-finished, and in perfect shape, is too big. Somehow or other, over the last two years, it seems every dining room chair needs re-caning and refinishing (I TOLD them not to lean so hard), and the wheels on the kitchen chairs we’ve enjoyed rolling around are destroying both the chairs and the floor.

This house needs a healthy woman in charge. And people who like to do things at the workbench in the basement. I’m not that woman: I did my time.

But somewhere I need to leave a plaque:

In this house, between 2000 and 2018, Pride’s Children was written.

The beginning of it, anyway, because NETHERWORLD won’t be finished here.

There are places I could leave such a plaque, places I know, places behind – where a new owner won’t even know there is a place.

The written record

If you’re a writer, and have a thought – a blog is the perfect home to let it run free. Who knows – some day you may gather your thoughts in words, clean them up and organize them about a theme, and publish them.

I look at this blog, with over five hundred posts since I started in 2012, and I know some of those posts would make a different kind of book on writing, and others would document the production of my own epic – and marvel that the format allows them to still be there when I’ve moved on. I really ought to go see what is there. Might make for some interesting archaeology.

I’m finishing this at six a.m. because the ice dancing at the Olympics put an earworm into my brain, and then I got hungry… You know the drill. It’s a good time for humans to get nostalgic.

How think ye?

Thanks again for Stencil‘s images – consider them if you need a source of them for your own blog. The pictures make me think, and then we’re off on another wandering trail through the writer’s brain.

Fearlessly make a stress inventory and face it


I realized that I’ve been living in a very tightly wound knot, and I’m making myself aware of how often I need to relax my shoulders and breathe.

Stress has the potential to further affect my health, even as far as accelerating my death, and exposing me to not very pleasant forms of that.

Normally, I’m a calm person, but the past couple of years, continuing chronic illness (ME/CFS), the debilitating back pain I will find a surgeon for once we’re settled (maybe), plus new health challenges give me a resting platform that would be too much for anyone not used to it (or who has a choice).

But I didn’t realize how MUCH stress

I’m laughing at myself (laughter at self, good) because I recently identified that my assistant, who works for me part-time, was carrying way too much stress from her other, real, job, and family circumstances, and I wisely gave her one of the stress inventories available online, suggested she fill it out, and she did, and she discussed it with her doctor WITH her parents present – and I think it helped.

So I was primed – and knowledgeable – and still to clueless to realize I had an awful lot of extra stress this past year.

Fear for your life is big stress –

but you can’t think about that every minute. Not unless there’s something you need to be doing.

Including coming up this Feb. 21 on the one year anniversary of the stent debacle last year (from Feb. 6 to 22, IIRC), where it took the (?) cardiologists three heart catheterizations, 4 hospital admissions in two hospitals in different states, a nuclear stress test, and luck – before they found the place (on the third stent) which was going to cause a nice heart attack as soon as it closed up a bit more. Don’t ignore chest pain, folks.

Two more days, and all I’ll have left is the medical PTSD (keeps biting at odd times); the memory of the horrible side effects of the drugs, all of which I dumped; the possibility of more drugs if the flu (yup, I’m getting over the flu, too, and yes, I had the shot) after-effects don’t go away.

I hate turning into a hypochondriac, so I ignore anything that isn’t severe – while remembering that doctors sent me home from the first catheterization with chest pain – and a clean bill of health.

So, facing the stress requires listing all the possible sources

Very partial list:

Moving: We’ve lived in this house, only the second one we’ve ever owned, since 1981. On March 5th it will have been 37 years. I’m pretty useless around the house any more, so all the fixing will have to be done through intermediaries, which means finding, making decisions, following up on, paying strangers wandering through my house. And making the decisions (and expenditures) necessary to sell a house in good enough condition to attract a decent buyer.

Dejunking: With each assistant, I’ve been dealing with the stuff which accumulates in a house with five people and the mother ill. For literally YEARS. With no false sense of keeping it all forever. To show a house, it must be tidy, the closets must feel airy and large, and the storage spaces should appear ample. Do you have any idea how many coats I’ve given away? How many remain? And how many are not mine?

Finding our forever home: I’m not doing this again, so we have to pick a place to live, with our diminishing energy for the task and before other people have to do it for us, that we will die in. I’ve written about Continuing Care Retirement Communities (CCRCs), and we’ll be visiting California to pick one, knowing it’s intended to be a permanent move.

Kids: I will point out that any good parent of adult children worries like crazy about everything (and ours are doing well), by definition.

Family: How to see our far-flung offspring, and arranging the once-a-year vacation, with activities at all levels from zero (me) to healthy young adult. We weren’t doing the ‘visit Mom and Dad for the holidays’ thing anyway (they no longer really fit here, and there’s nothing to do, especially nothing I can participate in).

Finances: Goes without saying, even if you have savings – plus there’s that pesky bit about spending after you’ve spent your entire adult life (especially since disability meant I would not be earning again) NOT-spending. They want how much for a two-bedroom apartment at the CCRC?

Gizzy: A big problem. Rodents are not welcome at all CCRCs, chinchillas are long-lived, and she’s been a bit spoiled. It would be better for her to have a younger owner. Define ‘better.’ And how to find one, and hand her over safely. I will take her with us if I have to, but I’m coming to the realization that this may not be the best solution for either of us. Love the little gray furball.

You get the idea.

There are actually many many more, and some of them are connected with writing.

Slow writers have a problem in that the possible feedback from self-publishing (not even going anywhere near what writers who are not established enough to call the shots go through with traditional publishing) is slow. Unless the writer does all the things successful indies do – promotion, newsletters and mailing lists, interviews, keyword ads – the best help is the next book, and Pride’s Children: NETHERWORLD will probably not be finished this year, not at the current rate. It goes well – the advantage of a writing system like mine is the ability to work on a manageable piece at a time – but slower than usual.

Benefits of dealing rather than slogging on

The payback for doing the move should be the ability to dump a lot of the above stresses, and get back to a writing schedule which doesn’t keep getting interrupted.

Okay, those of you laughing in the back: I know it doesn’t work that easily.

But I do have the fact behind me that when I finished my parents’ final tax returns, and mailed them to the IRS, that stress just stopped. Hard. I worried for a day or two I might have done something incorrect – and cut that out. The paperwork supported the returns I mailed in – and that’s that. I have a nice plastic box an inch thick only with everything I might need if audited. Done.

I have started

I sent my assistant to the basement with my iPhone to take pictures of the information on the tile boxes. I checked out that the tile store I bought the front hall and bathroom tile from are still in business. Closed, by the time I checked, but open tomorrow.

I called the recommended mason. Yes, he does chimneys on roofs! Sent him pictures I finally extracted from the husband’s OneDrive. He is coming by tomorrow to take a look. Yes!

Oh, and I finished the last beat of the last scene of the next chapter – and listened to it in the robot voice – and it’s fine. I think I’m writing cleaner and sparer as I go (but it could just be this scene).

I firmly believe there are a finite number of steps necessary to get a house ready for market. I am determined to direct the efforts. I talked to someone who will call me back tomorrow about staging (yay cellphones – she was half a country away on a trip).

The flu will go away. I will find something to eat, and watch Olympics, and try to get some sleep.

And go back to whatever I can do tomorrow.

Did it help to list the stressors?

Yes, but the danger there is that listing is not reducing. Only reducing is helpful in the long run. Had we any intention to stay here when I started nagging several years ago, they’re gone. The movement is forward, interrupted by everything.

It’s keep moving – or literally die trying.

If I could finish my writing first, please?

New review post on Pride’s Children site


If you’ve wondered where I’ve been, part of is these last two weeks has been entertaining a guest: Mr. FLU.

And yes, I did get the flu shot back in October (I always get one), and every year as far back as I remember; possibly that’s why the worst effects lasted about a week.

But getting over the whole thing is no picnic. I am on tissues with extra softness – by necessity. I can’t wait for my heart rate, which went up to 100 bpm and stayed there for days during the worst part (normally, for me, around 60-66) is driving me crazy because it is still hanging up there at almost 80. It’s exhausting in itself.

Life and my Universes

Also had lovely houseguests.

And today, by dint of I don’t know what force, I finished a scene I started, according to my notes, on Jan. 21. Way too long, but had only sketchy notes as to what absolutely had to go in it, no rough draft for this one, and no brain. I swear it feels no different, finished, than the ones I have more to go on than a title and several Dramatica appreciations. I even listened to it in the robot voice, and can pronounce myself satisfied (if I ever get there).

New post (with cookies) – thanks, Stencil.

New post at Pride’s Children with a lovely new review that has lifted my spirits.

Said spirits have been on a rollercoaster ride; still trying to figure out how to post about the stress load I’m carrying – and will be until we’ve moved.

Be well.

The Discipline of the Long-Distance Writer


I am NOT a sports fan, but Philadelphia is around the corner, and I’m pretty sure they put a great amount of very hard work into preparing for their win. As did the other team – so there is that elusive luck quantity about peaking at the right time, and having everything work out when you need it.

BUT: it is not luck that wins most times. It is luck on top of preparation. Most ‘overnight successes’ aren’t. And if you have the great win right out of the starting gate, you still have to do it again – witness the number of debut award-winning novels whose authors can’t repeat the win. And are never heard from again (unless they whine about how hard it is in the pages of The New Yorker.

Everything about Cary Tennis’ aphorism:

The most heroic thing a creative person can do is to live an orderly life so the work can get done.

is true. I don’t get anywhere without hours at the keyboard.

I’m acutely aware that, because I start at such a low level every day, a little thing like the cold that is messing with my mind is enough to render me useless to my chosen profession for both the days when I’m actually sick, and the aftermath days when I wonder where the Mack truck came from, because everything aches.

It’s not the pain that bothers me – lots of people live in pain. It’s that after a certain amount, I can’t think. And I’m way over that amount right now, sitting at my computer trying to think.


When you have choices, at least some of the responsibility for what gets done in your life is yours. If you choose to go to the gym regularly, your body may be stronger and more reliable. If you could, but you don’t, the deterioration or lack of strength is partly your fault.

I have to get back to my basement exercises as soon as I can breathe normally, so I don’t get worse.

One thing at a time!

Use what you have in your writing

I was wondering where that extra edge of tension would come from in the scene I’m writing, and it occurred to me that I’m living it.

A common phenomenon for people who live with ME/CFS is the PEM crash. PEM – post-exertional malaise – is another one of those phrases which minimize a real disaster. PEM is really post-exertional exhaustion – a crash that can last for days after you do something more than you could really handle at the time. A crash that is made worse by trying to do things before you’re past it. A crash that is created, somehow, by taking energy out of your muscles with adrenaline.

I don’t know if it’s the adrenaline itself, being very slowly processed by a damaged liver, or if something else in the fragile body system is triggered by the push that precedes the crash. There is no known cure, though fluids, proper nutrition, and LOTS of rest can help.

It is another of those realities which cannot be ignored.

We’re watching the Olympics, and hearing about the athletes pushing through their pain and damage. And about permanent damage that can end an athlete’s career. Sometimes, they can work through the pain; sometimes, if they do the hard rehab work, they can improve their performance. Sometimes they try to ignore it; sometimes that works, or works long enough for them to achieve the next milestone. Hard to know whether they can take the chance – and win in spite of an injury – or whether, this time, it doesn’t matter how much pain they can tolerate in a broken foot, because they still can’t use it right.

I always come back

So far. Eventually.

But I’ve both speeded up (due to experience and practice) and slowed down (due to having been ill longer, and, that favorite of everyone, getting older).

I’ve reached an odd-enough spot that I want to document it, to see how to improve process, if possible, or to just move it along this time.

The immediate projects are competing fiercely

And they are getting done – albeit at a speed that would make a tortoise cry: my parents’ final tax returns (VERY long story) have been in the mail long enough that it’s the IRS’ problem, not mine. Yay! But talk about soul-sucking, useless tasks that teach you nothing you can use in the future.

I have a couple of small typos/errors I want to fix – but will have to re-load all the information about making files for Amazon and CreateSpace into my head, and then learn the new task: how to post a change in a published work. Good to know, not so easy to acquire; I’ll have to take notes, too, or I will forget.

I’m putting off working on putting Too Late, the Pride’s Children prequel, up on Amazon because it is TOO SHORT, and I fear a backlash. From whom? Dunno. But my fertile mind throws up roadblocks whenever it can find them. It would throw up roadblocks if I decided to STOP WRITING and just ENJOY OLD AGE. So it’s no reason to stop.

On the record: I am now more afraid of doing a short story wrong on Amazon and forever ruining my reputation than I am of having gotten my parents’ tax returns wrong and being jailed by the IRS for tax evasion. Easier to laugh at that once I’ve pinned it to a blog post.

The long-term move is back on the horizon

We have to get out of this house. Not because it isn’t lovely here – it is – but because the maintenance is something I can’t help with any more, and it is unreasonable to let the husband do it all, and difficult to find people consistently to do it for you. Plus the complete social isolation of rarely getting out of this room.

But now, following the last days of all four of our parents over the past three years, we have a whole lot more questions to ask and details to worry about that we hadn’t even realized – and won’t be in a position to control at whatever age they happen, because you are not all that functional at that time of life. Way too many things went wrong. Things like nurses in the hospital who won’t make the effort to make sure their patient can HEAR them. Things like ‘hospice’ – a lovely idea from the 70s – having been turned into another Medicare supplier which is farmed out to the lowest bidder, and has failed, dramatically, when most needed. They don’t even have hospices any more – just services dependent on funding and staffing. Once would have been bad luck. Twice is systematic.

So the thought of moving near where at least one of our children might locate permanently (San Francisco), rather than generally to California and taking care of ourselves, has reared its ugly head to mess up the choices. But most people don’t move out of a retirement community once they’re in (except when they can’t pay for it), so choices made now are crucial for the future. When we won’t be in a position to make them for ourselves.

This is what I do when I feel a tiny bit better

I hope being able to think a few things out, and blog about it however lamely, means the cold is on its way out. I’ll still be a dishrag for a couple of days, but the drive to write SOMETHING, and to try to make it coherent, first comes back when I realize I haven’t posted in a while.

And if I can use that idea in the scene in progress, well, I won’t say it’s been worth it, precisely, but I may be able to profit from it anyway.

And here we go. And there’s another bunch of semi-connected thoughts out of the mind and onto the page.

And I’m more terrified than ever of getting the flu!

How’s your winter going?

The Greatest Generation is now gone


At the beginning of 2014, my children had four living grandparents 90 or over.

As of last week, they have none. Husband’s dad, a good man, at 97, the last of our beloved parents, now knows if there is an afterlife or not. Our parents are missed, and there is nothing anyone can do about it except remember them.

It is sobering to think about now being the matriarch and patriarch of anything: husband and I are both eldest children. My parents did that so well for so long, and I can still remember my grandparents in Mexico doing the same thing. And I am not capable of doing any of what they did, keeping the family together by having everyone over for dinner on Sundays or Mondays, holidays and birthdays. I have been the beneficiary, and can’t pass it on. Our kids are currently in San Francisco, Boulder, and Troy, NY.

I have so many stories, and I have passed them on (ask my kids – I’ve talked their ears off), but I have not the energy to write many of them, not while I’m still writing fiction myself: there are only so many hours in a day I can use, and stories are best transmitted in person.

Making new traditions

I have come up with the idea of us going to a resort once a year, all of us. Not at Christmas or Thanksgiving, but at a convenient time. We can see each other every day, spend time with slow Mom on the beach or in the pool, and then those who can will take advantage of whatever the resort and local area have to offer, and maybe gather for dinner. For that talking part. A way to bring together someone with no energy and descendants with it in abundance. As long as the old folk can travel.

This way, I reason, they can go to the in-laws (when they have them) for holidays without trying to be in two places at once.

We’ll see if it works out; but we can’t maintain the family homestead, an awkward but much loved house with way too much space and maintenance, and too many stairs, just so the small clan can gather at a time when travel is horrible and in a place (suburban central NJ) where you have to go elsewhere to do anything. I have failed the task of ‘everyone is going to Grandma’s house.’

So be it.

At home in Mexico, a gigantic extended family still gathers – but we don’t go.

Now to focus on the two of us

I have to make my tiny daily allotment of energy cover getting out from under the responsibilities, which are becoming overwhelming (mostly for husband), and out of the social isolation which comes from having little energy to go anywhere.

Selling a house and moving, possibly cross-country, and settling in to a retirement community, is non-trivial, but it is only going to get harder. Most people leave it too long, and move in a crisis. I need things I can’t walk to here: a pool, a gym, facilities like a sound studio – and many of the Continuing Care Retirement Communities (CCRCs) have them. We need to find friends – ours here are moving away, or are no longer with us.

And I am aware of how delicate my ability to write is: everything that has come along has stolen days worth of writing because it needed that focus and clarity I can only achieve for a couple of hours a day at most.

The last of the big brain-sucking tasks,

finishing the tax returns for my parents, who were both American citizens even though they lived in Mexico since 1957 (and Pepita when she was a child), was finished yesterday. Daddy’s went with the postman.

I gritted my teeth and filled out Mother’s immediately following, aware that if I set the second task down I would have to learn from scratch all the tasks and arcane instructions – when I could force myself to do it again some time in the future. It was such a huge task (for me – not for a normal human), and consumed so many hours since June 2016 when my sisters gave up and asked me to do it, that I despaired of ever finishing. Mother’s is sitting in a sealed envelope for the postman today.

Each return was four simple pages. Above the surface there is no evidence of the frantic paddling below that reading and filing take, IRS worksheets and arcane bits from processes intended to make it hard for the very rich to take everything with them (ie, hand it over to their rich heirs). To finally end up at the same point for each detour: $0.00 – insert in box X of form 1040.

And on the bottom line: no tax owed. Which is good, because, IIRC, IRS penalties for filing late are some percentage of the tax owed.

I made every mistake possible during my filing of this twice-in-a-lifetime (mine) paperwork, including, yesterday, deleting the just completed return by writing the IRS instructions over it. Don’t tell me I should have let a tax accountant do it. Just believe me that it would have been far worse, and on someone else’s brisk timetable (the horror!).

I can do this stuff: but it takes days’ and days’ worth of all the energy I have.

And I learn nothing that I can use again. I fervently hope.

I’m a writer now, and still working

I plan to finish Pride’s Children, Books 2 and 3. Several nice people have claimed they’re waiting for the rest of the trilogy. As long as life and brain hold out, that’s the plan, and I’m very aware it doesn’t depend on my intentions. I hope God isn’t laughing too hard.

With the latest marvelous review, I have made some new connections on Goodreads, and possibly learned some useful marketing tips.

I despair at where the energy will have to come from to do a better marketing job, but obscurity is the other option, and I’m not happy with that, either.

When I do settle in to the writing, though, the deep pleasure is still there; my beta reader is content and says I haven’t lost it; and I still experience that moment, for each scene, when it all clicks and I know: that’s the way it really happened.

Given that Olympic skiing is off my list of possibilities, I’m glad I have the writing one for the story only I can finish.

There is so much yet to learn

A huge part of life is doing the best I can so that, if they every figure out ME/CFS, and it isn’t too late for me, I will be able to take advantage of the medical research, and maybe write faster. Or go skiing again.

My support group on Facebook has other people like me, and invaluable sustenance (as well as overwhelming loss). We CFS folk have little hope, but losing it all hasn’t happened for me yet.

If I did, I have no idea what I’d do all day.

But we are the oldest generation now, husband and I, and we don’t give up. Yet.

That’s why I’ve been missing from the blogging world. Hope you’ve all been okay.

Does your character make readers uncomfortable?


When I set out to tell the story of Pride’s Children, I was originally driven by a sense of the unfairness of society toward those who have most need of its kindness.

Specifically, your DISABLED character?

There are two USUAL ways to deal with disability in a character: as a decoration or as a problem.

The first – a ‘feature’ of a character – gets mentioned every once in a while, but doesn’t seem to stop the character from doing most of the things ‘normal’ able people do. And it mostly leads that character to be a secondary character, a sidekick, the ‘friend in the wheelchair.’

The second leads to ‘inspiration p0rn’ (avoiding search engine problems here), and the solving of the ‘problem’ consumes the space dedicated to the story, with inspirational results – problem solved – or, sometimes, the character’s death (in a disturbing trend, by suicide while making life easier for those left behind).

Ignore the fact that suicide has a horrible effect on the people left behind. Most of us know of someone close to whom that has happened, and know they would do almost anything if they could go back in time and help.

Disabilities in real life

Disabilities are far more abundant than people think. If you count all disabilities – and I do, of course – estimates run over 20%. Don’t forget the invisible ones: FM, mental health issues, pain, CFS, non-visible genetic ‘abnormalities,’ a thousand things that make life difficult for the disabled person, but generate wrath in observers who watch them use the handicap parking space. Don’t forget old age and its common memory and mobility problems.

The counting is made difficult because of a human tendency to hide problems if it is at all possible, so you will not be ‘different’ or ‘other,’ and attract unwanted attention. Presumably there was some evolutionary benefit to getting rid of tribe members who would slow you down when your tribe was in the hunter/gatherer phase (a rather long time ago).

We ‘pass’ for normal/able as long as we possibly can, which also makes us suddenly appear very disabled when we can’t pretend any more.

Animals do it, too – everyone knows of a pet who didn’t let its owner know something was wrong until it was far too late to help. Wild animals do it so as not to appear vulnerable, as the weak and the sick are noted as easy prey.

But there is a different way for a writer: reality

I have taken the step of writing a disabled MAIN character, with a significant disability, which she ignores as much as possible, and bows to when inevitable.

For this disabled character, writing is a job – and she’s been successful at it, very slowly – and by staying hidden from the world.

An Amazon reviewer:

…while much of the plot centers on the cautious romance, Pride’s Children is also about a writer’s way of interacting with the world, living with a chronic condition (CFS – … I realized that I couldn’t think of any book I’d read, recently, involving a character with a disability or chronic illness – a significant hole in terms of diversity), and the struggle to remain balanced and kind when new people and routines enter one’s carefully-ordered sanctuary…

Disability is a learning experience

Those who are or become disabled have a steep learning curve: everything is harder. Moving, learning, thinking, being independent, even making new friends – all these are more difficult the farther a character is from the norm.

And the effects are interwoven: difficulty reading means trouble holding a job, getting to that job on public transportation or by learning to drive. No disability is purely one thing you cannot do.

There are few disabled characters in fiction (which is why they stand out) because writing them is extra effort. It’s easier to write about kickass heroes and heroines who tough it out through thick and thin and keep on ticking.

Just tonight we watched, in the same show, a character get stabbed in the back by an enormous kitchen knife embedded at least four inches by the blood shown carefully on the blade when it was pulled out by the stabbed character, who then went on to limp a bit while he walked around, interacted, and finally was not shot by the police detective – and who survived with no visible effects by a short time afterward; and a character poked at in the stomach by a little knife who died instantly. Neither of these seemed at all realistic – but the plot required one survive to talk and talk, and the other to be removed quickly from the scene.

In the same way, disability in fiction is mentioned when necessary to make a quick plot point – but not there pervasively.


I have written about how properly-constructed fiction is uniquely helpful in creating empathy in humans because it allows them to live alongside a character the life affected by the choices the author has made (type ’empathy’ into my search box).

They do, however, have to read said fiction, which means it has to be surrounded by the best entertainment the writer can provide.

I’m not surprised there aren’t more disabled characters, but I’m disappointed that indie isn’t more of a place where, since the big publishers are not supervising the product, there are more disabled, diverse, and simply ‘different’ characters and stories.

But there is that pesky thing about having to write well to sneak the empathy bits in under the radar. It takes more space, more words, more time.

It is MUCH harder to market.

I still think it’s worth it.

Do disabled characters make you squirm?

The pain of discovering typos in published work


Pride goeth before a fall

I know that. I expected that. And my typo rate was, I thought, rather low, especially considering that I ended up being, for reasons too long to go into, my own proofreader.

And I worked my tail off at it. It’s very hard to be critical of your own work. So? It’s part of the job.

Now, I have found egregious (well, to me) typos in traditionally published books – one major book on writing that I use almost daily has ‘principal’ (main, or the guy who is in charge of a school) instead of ‘principle’ (fundamental truth or morally correct behavior) not once, but twice – so the author got it wrong and the proofreader failed to correct it; or a proofreader got it wrong, changed it, and the author didn’t catch the incorrect correction. Or they both have no idea they don’t know.

I earmarked the place, and occasionally toy with the idea of sending a note to the author (which I don’t do – not my circus, not my monkeys). For future editions, you see. Because it is the kind of book that gets future editions.

But it amuses me to know it’s there. And I still love the book.

Proud of having low error rate, until…

I had found ONE wrong word, ONE extra ‘s’ at the end of a word, and a couple of places where, when doing the final formatting pass through MS Word (to get widow and orphan control, running headers and footers, and right margin indents for the print version of Pride’s Children), WORD inserted some stupidities (specifically, leaving –” as the only thing at the beginning of a line, 5 or 6 times) after I published.

They’re on my list of things to correct on the CreateSpace file (yeah, it’s on the to do list, somewhere in the 9000s). No one who reviewed has commented on those tiny typos, so they’re not all that significant in the flow (or my readers are being kind).

And all but the first two are not present in the ebook, which didn’t go through Word.

Acceptable. Imperfect, but not too much.

Possibly because my youngest daughter mentioned it (she finally read the book!!!), I was a little more attuned to a particular possibility when I was sitting in the doctor’s office yesterday, reading my own book.

And then, wham! I saw it. I’m not even sure if it’s the same thing my daughter mentioned (though it may be), and I now know exactly what I did, and it really doesn’t affect the story that much.

But I am now aware of a FLAW that I, as a perfectionist, can’t let stand.

Easy to fix?

Can’t let it stand.

You know me.

I moved the idea of putting an errata page on up on the list – so those lovely people who purchase the first book in the trilogy in paper can correct their own copies (not that many readers, but still…), possibly now aware that they have the coveted First Edition – flaws and all.

Or I can slink away, offering (consider yourselves offered to, if you are one of these wonderful people) a corrected copy as soon as I can make them, and being aware that they were either too kind to point this out to me, or, better, too engrossed in the story to even notice.

The ebook will be corrected (again, asap – not a fast possibility, either), so that anyone who downloads it again will automatically get the corrections. If they care. Because this new little typo is in both versions. [hangs head]

The good side

There’s ALWAYS a good side.

I caught it (before I had a chance to look up my daughter’s questioning whether I had it right). From reading it myself in a relaxed way, with nothing else to read. Rather than from it being scornfully pointed out by a reader. Rather less painful – or is it?

Because I’m indie and self-published, it is both my responsibility and my right to fix it (so I don’t have principal for principle for all eternity of this print run).

CreateSpace and Amazon make it easy to fix (haven’t done it yet, so that’s ‘easy in principle’ for now): I upload the corrected files (I believe), wait, and within a couple of days, I can hold my head up in public again.

I have added (mentally – that darn To Do list is so darn long) a few things to the ‘look out for’ list for my AutoCrit editing passes. Especially since my brain appears to be losing its mind, I will now examine every single ‘s in each scene because the world not understanding that plurals don’t have apostrophes is its problem, not mine. I will speak sternly to the brain, and it will whine that it’s so overburdened already, and I will remind it that I’m in charge.

Etc. I.e., I will improve my skills based on this little irritating contretemps.

And because I’m indie, I don’t have to deal with a proofreader about the whole thing.

So why am I making a big deal of this?

Because professional means that you worry about these details, and that you try to make the next one have fewer (not less) errors.

It’s good for me to see where improvement is necessary (believe me, there is a whole new process in place so this particular little error won’t recur).

And it actually bolsters my belief that self-editing, and learning from your self-editing how to be a better writer is critical.

I stand behind my own work, even in the tiny places.

For the future

It’s okay to point typos out to me if you notice them. I just got a wonderful email back after my beta reader read – and liked – the next chapter. I strive to send her finished work. And her wonderful nitpickiness tells me what she likes, asks questions which lead often to some wonderful back-and-forth, and always mentions the little things. She found two. I love her for that.

It also reinforces that doing the beta reading one chapter at a time has some significant advantages for me: a chapter is a reasonable size chunk of writing to deal with at a time. Things get noticed.

And I can’t see how this would possibly work with a traditional publisher, the timing, and the diffusing of responsibility. All while the writer is supposed to be writing the next book. Not for me, anyway.

So there it is. And no, you won’t find out from me what I did wrong (at least not until the Errata page comes out). If you didn’t notice, I’m not going to be the one to point it out. Nope.

Welcome to the wonderful world of independent writing. PLEASE feel free to contribute your own stories.

Thanks to Stencil and Quozio, my go to places for images. I’m resonsible for the silly words that appear in them.

What do disabled writers fear most?


Waiting since June 30, 2014:

You fear getting worse. Because you can. Get worse.

And when writing is a marginal activity already, getting worse can be the snowflake that sets off the avalanche.

When I was young and able – a status not all people who are disabled can claim – I thought I could handle ANYTHING that Life tossed at me.

I was me – I’d figure out a way. Somehow. Eventually. And I always seemed to. I had a brain!

Now that the only way out is death – which is, I hope, still not close – I am facing the trauma of becoming even more disabled, more dependent on other people, less able to care for myself.

Frankly, it scares the hell out of me.

I fear losing even more of my mind. Now, if the planets are aligned, and I have done everything correctly, I get to live in the simulacrum of the mind I used to have – quick-witted and opinionated and so-often right – for at least a little while every day, or to feel it there, right beyond my fingertips if I take that nap, stop leaving the house so many times in a week, get to bed early: it’s there, it hasn’t gone completely, and I had it yesterday, maybe today, perhaps tomorrow.

I have already told my husband to put me in an Alzheimer’s/dementia facility if my mind goes – I don’t want his tender care, watching over me, stuck with that version of me. My mother and my grandmother sank into that hole, and it isn’t pretty – what if I got CFS because I am somehow genetically weak? And have already passed it on to my kids – the older two without knowing, and the third, the girl, after I was sick?

That way lies madness.

We all have SOMETHING wrong with us.

And it’s only going to get WORSE.

The happy seniors hiking in the mountains are in the minority: statistics tell me that if I live to 85 (I planned to live to 115), my chances of dementia are 50%.

On top of this unhappy state of affairs (and I have to my credit only one thing: I’ve never asked Why me, Lord?), I have been dealing, for a number of years, with the inability to walk properly – and here I thought it was ‘ONE disability to a customer.’ And it’s getting worse.

Actually, no – if part of you doesn’t work perfectly, if part of you is ‘disabled’ – it has a tendency to put other parts of you at bigger strain, and to make you more likely to get something else. Plus the statistics are exactly the same for you for anything unrelated to your disability as it is for other people: there’s no reason to think having ‘gotten’ your disability, you can now breathe free: people with one thing can be gifted with another unrelated one just fine (CFS and back problems do not usually go together, though possibly less exercise meant less fitness, which led to more susceptibility to back problems, or earlier, or…).

So why do I write about this potentially depressing subject?

You know the answer: because I’m that weird thing called a writer, and that’s how I get my jollies. No, really, I’m compelled to write down – anything that floats through my head. To get it out of there, of course, out where I can beat it with a stick (if you do that while it’s IN your head, there are problems).

There. I feel a bit better. Thanks. Thought you might like to know.

PS I speak only for myself – THAT I’ve learned. Finally.

PPS Going for that delayed nap I should have taken much earlier, but I couldn’t make the decision to, because, well, I’m over the age of consent and resent like heck that my mind needs frequent naps to work at all. Plus – oh, joy – the sheets finally came out of the dryer, and I always nap better on clean sheets. (Note to self – try to remember that, will you?)

PPPS Relentlessly dragging myself back from the brink.

2018: Still here, still writing.

Stubborn cuss.

And note I finally published in late 2015.

How to self-edit fiction with AutoCrit


I keep getting into online discussions with editors (cui bono?) who insist that no writer of fiction can or should self-edit. Not for publication, they say. And they cite the example of so many self-published books which are full of typos and grammar mistakes and spelling errors as proof.

Yes, there are many self-published books which need better editing. According to Sturgeon’s Law (Theodore Sturgeon, 1918-1985, American SF author and critic):

90% of SF is crap, but then 90% of everything is crap.

My paraphrase, but it will serve. It is now being applied particularly to self-published work, but applies to traditionally-published work as well. We can argue about the percentages, but the point is that much work gets published without meeting someone’s standards.

Some of us care. A lot.

I happen to believe that the best gift an author can give herself is to learn to self-edit well enough for publication.

The reason is simple: If you can learn to produce quality work all by yourself, the READER gets the unvarnished best the writer can produce, UNALTERED by someone else.

Voice unaltered. Tone unaltered. Style unaltered. Judgment unaltered. Story unaltered.

The thing which makes a particular writer unique is preserved for the delectation of the reader. Artisanal. As all writing should be.

And it only comes from really being aware of what you write – and why.

Okay. Now that we have the WHY, let’s have the HOW:

Think of the best quality in published traditional work. You should aspire to better that standard.

This is not an easy task. There is learning. And failing. And getting appropriate feedback. And yes, making mistakes in judgment and execution.

But setting yourself a rigorous process, adding to that process as you learn, and following that process isn’t that hard. It just requires becoming aware of the difference between the story in your head, and the story on the page, and not quitting until the difference is as small as you can humanly make it. We call this ‘work.’ Hard work. I have made a contract with my readers that I will do this work before they get to read what I write.

It is work that is rewarded by making you a better writer. Big reward. Useful reward. And, in the long run, it will save you money, frustration, and dealing with people who don’t get your vision for your own work.

Enter the final mechanical stage.

Once I have used everything I have learned about writing from my teachers, books by Sol Stein, Donald Maass, Blake Snyder, the Dramatica team, and all the reference books off- and online, I have a scene or a chapter which needs to be cleansed of dead skin.

It isn’t ready for the beta reader until it is finished, but my ‘finished’ needs the final mechanical stage. I use AutoCrit for this purpose. As close as I can get to the original AutoCrit program which is basically a counter of terms and a comparer of those terms against a database. There is a new version; I’ve learned to ignore the new parts because the last thing in the world I would pay attention to is a program telling me what to write. Writing is my job.

I want the mechanical editor to tell me what I’ve done, in a very black-and-white way. I want it to count for me, because counting adverbs is the most boring thing I can think to do by human. Or counting the number of times a four-word phrase (each possible four-word phrase in my text) is used. Or counting the number of times I have used words or phrases (and showing me where they are). And making a list of unusual words.

For this I use certain specific sections of AutoCrit.

After pasting the text in, I visit the following menu items:

Strong Writing: Adverbs, Cliches, Redundancies, and Unnecessary Filler Words.

Word Choice: Generic Descriptions, and Personal Words and Phrases.

Repetition: Repeated Uncommon Words, Word Frequency, and Phrase Frequency.

For all of the above, I ignore the program’s nagging (such as ‘Remove about 3’ when it somehow decides that I have too many occurrences of ‘that’), because for me, AutoCrit is only an automated counter doing the dirty work for me because I’m too lazy to do it myself (and know that humans given mechanical tasks make huge mistakes because they get BORED).

I do NOT use other sections. Why? Because they judge me. Or someone wrote a little piece of text to put there that sounds just like it. Once we go from comparing the number of times I use ‘that’ to the average for fiction in their database, I have all the information I want from an algorithm.

Pièce de résistance: how to use the information.

This is the writer’s job: every single counted detail from my text, generated easily by a program, is now subject to the final test: Is this the way I want it?

In other words, it’s back to me. Not with suggested ‘improvements.’ Just counted, and displayed for me to decide if it serves my final intent to have the text stay the way I wrote it (remember, I considered it pretty much finished before I tossed it into AutoCrit).

If it shows me clichés from its database that I have used, I have to decide if the character using the cliches uses cliches. Some do, some don’t. Clichés are neither good nor bad. For some characters I will keep the cliché but try to make the sentiment unique again – which leads to some pretty interesting substitutions from that subconscious brain.

If it shows me I have used one of my personal words a certain number of times (my worst lately tends to be ‘get’ and its variations ‘got’ and ‘getting’ and ‘gotten’ – all of which I’ve input to my personal words file in AC), I will decide 1) if there are too many, 2) if they are the only way to say something (rare), 3) if they have a literary intention (parallel structure often leads to word repetition the database can’t account for),…

Generic Descriptions usually have to be separated into two piles: those in dialogue (and even those benefit by tweaking) which mark a specific character; and those in the internal monologue where I dump what other people use a narrator for (It was a dark and stormy…), ie, description. I may have a very good reason (really) for using the generic description, but it doesn’t hurt to be reminded to check.

I never, ever, use AC’s Homonyms tab, because it is excessive, and I can spell, and have NEVER yet found myself using the wrong homonym. Okay, maybe two or three times in the 3.5 MILLION words I’ve put through AC, but NOT by using the Homonyms tab. Too much stuff to process – there are a lot of homonyms in English, and they will find all of them and offer what seems like every other word in a red box. There must be a better way to do that mechanically (don’t mark every ‘you’ because it might be ‘ewe’); meanwhile, I put those words I might misspell by accident into my Personal Words file (though, thought, through, thorough).


First, examine every single kind of counted word or phrase that you might not otherwise catch, and

Last, decide whether and how to fix it: you’re the author – it’s your baby.

Very simple.

It still takes time, and a lot of effort, and a lot of thinking, and going back and forth to Scrivener with the text of a scene.

I find I can do about 5-10 corrections at a time, after which I save the results in Scrivener, get a fresh copy of the text, paste it into AC, and re-process that tab/menu/submenu.

All other types of errors – spelling, punctuation, point of view consistency, chronology and plotting, content (was this character a red-head?) – should have been eliminated (by me, the spellchecker, and a dictionary/thesaurus) before I use AC.

But I care – and I’m not using my beta reader except as a first reader. For what should be finished work, so she has as clean an experience as I can make. I don’t want her pristine read complicated by anything that distracts her from the flow; when she tells me something doesn’t work for her, it is going to be taken very seriously.

And that is how I use AutoCrit (I have a Lifetime membership – worth every penny) to do what no human editor should be asked to do (count) and what I don’t want an editor to do (change ANY of my words, which includes suggesting I change them). They may not be happy about this, but it is the least traumatic way for me.

I really should stop even clicking on those ‘everything needs an editor’ posts. Their authors, some of them editors, hate people like me.

Making do with everything you’ve got


And I wasn’t even aware of it until I read one of my favorite bloggers, Dave Hingsburger, talking, as he does most days about a little story of people with a disability running into ‘normals.’

My random thoughts about my day

Even in one of my favorite tales, H. G. Wells’ The Time Machine, which I’ve talked about before, in a highly dysfunctional future society which manages to continue working somehow, and where characteristics have split into the industrious but subterranean Morlocks (who keep the world working but look like trolls), and the fragile beautiful Eloi (who basically do nothing useful but tug at the Traveller’s sympathies because they are scared), there are no disabled people.

Who we are

We get ignored a lot. But worse than that, we get looked down on. We get blamed for sucking up resources and money.

Periodically someone suggests just getting rid of us all (this is called eugenics: from Wikipedia, ‘a set of beliefs and practices that aims at improving the genetic quality of a human population’).

Please do try to remember that Dr. Stephen Hawking is disabled.

We are everyone else

Do please also try to remember that humans are fragile, and each of us is one second from not being at all, and one second from becoming one of the despised disabled – and in need of all those services they considered too costly before one of them needed them.

We want to work if we can

Some of us can. Some of us try to support ourselves by our own labors (I’m not in that category; I supported myself because I had disability insurance, something everyone should consider as it is 5 times more likely to become disabled than to die during the ‘working years’).

Some of us can’t. Luck of the draw. Chaos theory and an automobile heading toward us one inch to the right (ask novelist Stephen King; or better still, read the end of On Writing, where he has detailed how a careless driver nearly removed him from your list of best-selling authors).

Some disabled people are capable of producing great work; some are capable of producing a different kind and level of work. But most of us take longer, sometimes a great deal longer, to produce that work. Slow brains or bodies make it a lot harder.

Personally, I think those who keep trying anyway – against the disdain and rudeness and downright hatred they might encounter in public spaces (yeah, that kid with Down Syndrome clearing your table at the mall is, how lovely, a target for teens who think they are somehow responsible for their own wonderfulness), are demonstrating how important it is for us as humans to contribute to our society if we can.

And yes, I’m one of those, so it does sound like I’m tooting my own horn, but today is my day, so I may be permitted a small ‘beep.’

And, of course, we are your brothers, sisters, parents, children, neighbors…

Who of us does not know someone in this category?

And which of us gets through life without?

Please celebrate with me.

We’re not different. So would the world kindly stop treating us that way?

And, if it pleases you, buy our work. It might even be created to much higher standards than you think (hence the title of this post) because it costs everything we have. Yes, you are permitted to make me go viral if you like my fiction, and yes, I am working very hard (and incredibly slowly so as to keep to those standards) on Pride’s Children: NETHERWORLD.

Those who can support themselves by working would really like to do that. And those who can’t will be supported by our taxes, too. I’m good with that.

Please ignore the slightly old-fashioned tone: I have been reading Miss Manners.


Sunday, December 3, 2017




My funny 2017 Thanksgiving Day story


The only excuse for this is that I’m pretty isolated, the kids are too far away for travel and for various reasons we two just don’t ‘do’ Thanksgiving any more (except that husband has opted to have me make his traditional pizza – I get the crust ready, he piles on everything he loves).

Out of the blue

My dear friend Sandy called this morning, to invite me out for lunch for my birthday. It’s a tradition we’ve had for a long time. As she has moved from New Jersey to Vermont (though her youngest is still here), it is an unexpected pleasure because she is here to celebrate the day at her old home.

I was delighted, and we quickly agreed on a time and place. We eschewed our old ‘writing partners’ traditional restaurant because, the last couple of times we’d been there, we both agreed quality had dropped.

I enthusiastically agreed to The Cheesecake Factory. They’re a bit noisy, more at dinnertime though lunch should be okay, but their food is good and has a great variety, and they have low carb cheesecake!

Write it down, Alicia!

I write the information on a Post It!, being as I am getting forgetful and don’t want to make her wait tomorrow, even changing the refill on the gel pen to make sure the note was nice and dark. I stick the note where I can’t possibly not see it several times today, which is what I need for it to penetrate.

I’m sitting here at the computer wasting time, as I do in the mornings, thinking about the posts I’ve read this morning, and the general concept of being thankful for what you have, and grateful in general. I turn to erase the message on the answering machine which is blinking in my peripheral vision’s range.

Suddenly, the slow-moving cogs in my brain finally do something. I stare at the note. I start laughing.

I call Sandy, startling her (I’m sure she’s probably up to her ears in cooking or something), and say, “Do you realize what day tomorrow is?”

She said no, and I pointed out it will be Black Friday. She still doesn’t get it. I said The Cheesecake Factory is in QUAKERBRIDGE MALL.

We agree neither of us do Black Friday – and I said, “But other people do.”

Disaster averted

We had a good laugh, picked a different place far from any shopping venues tomorrow, and will have a great lunch catching up.

I can only imagine what it would have been like if clueless me had gotten into the car and tried to drive to the Mall tomorrow for lunch, late as I usually am at that point.

I hope ONE of us would have noticed by then.

Happy Thanksgiving, my friends.

Me, I’m just grateful I’ve received so many things today to make me laugh.

A white rose for my memories

Bouquet of white roses and other blue and white flowers Alicia Butcher EhrhardtMEMORY TRIGGERS?

Things stay with you.

My Mamina, my mother’s mother, lost two boys. One, my uncle Joseph, was her last child, and lived only a day. The other, my uncle Billy, named after my grandfather Papa Memo (Memo is a nickname for Guillermo – William), came down with encephalitis at eleven.

My mother told me the story of how she rode in the taxi with my Papa Memo to take Joseph’s tiny coffin to the cemetery because Mamina was too devastated to go, and still dealing with the birth.

But she was only sixteen, and she missed her little brother Billy enormously, as of course they all did. A child of eleven is not really a child any more. It must have been very hard for my aunts Alicia and Betty, who were even younger.

Families cope with these catastrophes because they must, but it is to their credit that none of them became embittered in any way. My grandparents were some of the warmest people I have ever known, and showered me with love (and possibly a bit of favoritism) when my parents moved us all to Mexico in 1957.

I’m going far afield in a bit of background, but something has come, in an odd way, full circle, and I’m stopping to record it. I’m afraid if I don’t, I might forget.

Mamina told me one day in the garden of the house at Adolfo Prieto 1225, Colonia del Valle, Mexico City, of how, after Billy died, a day toward the end of the year, she came out to the garden to find a single white rose on one of the rosebushes, long after the end of the season, even in Mexico. And she knew, immediately, that Billy was at home in heaven, and safe.

They are with him now, as is my mother, Pepita. Yesterday I received a completely unexpected sympathy gift from, of all people, my financial advisers at Vanguard: a bouquet of flowers, blue – and white. With white roses.

Life happens in between story moments


Where is the rest of life? FRIDAY

One illusion novels maintain is that nothing of importance happens in the moments the writer chooses not to present on the page.

I bank on that bit of prestidigitation myself; I’m not against it, but I have to remember to consult my story calendar, the plot, and logic, when I fill in one of the prompts I always use:

Timing considerations: Since last scene, or last scene for this character, what has changed/happened? Does it make sense? Does it have conflict opportunities? Does it have to be dealt with?

A novelist fills the gap with a word, a flashback later (if the reader is lucky), or a jump cut, simply switching to a new scene with the assumption that readers can figure it out.

And we do. Movies no longer need those silly calendars showing the pages blowing off – we get it.

There is still, in most novels, a sense of moving forward in time, and not bothering to document the smaller bits that make up existence: characters eat, take a taxi, work.

But readers have an innate sense of when an author left something important out. The reader’s mind goes, “Huh?” Too many of those, and the reader is no longer interested in the story because, truly, there isn’t one.

We’re watching a couple of streaming TV programs: Hinterland (set in Wales) and Crossing the Line (set in Europe), and have these little discussions about linearity of plot, because either they do things differently on the other side of the pond, or we’ve lost some important ability, because we don’t get things much more often than we expect not to understand.

It’s a minor annoyance when watching TV, and my guess is that something got cut between the script and the final edit – different people doing the work? The shows are atmospheric enough to carry through (though the first seems both skimping and padding because I think I could cut it from 90 to 50 or 60 minutes and it would be improved considerably).

Life is boring

And full of little details – things which have to be done – but which contribute nothing to the eternal verities. I spent my good time this morning talking to online pharmacy and doctor’s office personnel – and got no writing done. Eventually, the pills I depend on may make their appearance, and I won’t be in so much pain I can’t think, much less write. As many of us are finding, those drug-seekers out there (some of which are probably just getting crappy medical care, and are experiencing pain they should be) are making life much longer and more boring for those of us who are trying to follow the rules.

It’s always so: the rules are tightened, but the people who are breaking them aren’t affected, and the ones who were not doing anything wrong have to deal with more paperwork.

This makes the future scarier

I can sort of cope now – if I don’t do anything time-wasting such as trying to concentrate on my writing for a few hours.

Some day I won’t be able to cope at all, and someone else will have to do this stuff for me, and they probably will neither do it right nor efficiently, and I will have no choice but to suffer the consequences.It is laughably difficult to leave instructions for such things as “don’t feed me carbohydrates,” or ” I can’t lie comfortably very long on my left side without a VERY thin pillow under me,” or “I HATE raw tomatoes.”

I hope that doesn’t happen too soon.

Meanwhile, I cope day-to-day

Badly, because my coping skills are somewhat age-dependent, as everyone’s are, but much slower than most people’s to start with.

I really thought I’d be further along – that I’ve learned to gather the input for a scene faster, and turn it into prose faster – but it isn’t even keeping up with the increased pressure of “thing that must be done.”

The big ones

Settling my parents’ estates and filing the required tax returns – an exercise quite pointless, as there will be no tax money in it for the government.

Finding a retirement community – I have realized lately that financial information (ours and theirs), and knowledge of floor plans and meal plans, is barely the beginning. As I dig deeper, I find the questions of medical care when you can’t navigate it yourself, and even simply paying your bills in that condition, are much more important. And we haven’t even STARTED visiting the Assisted Living and Skilled Nursing components of the Continuing Care Retirement Communities (CCRCs), which are looming as more and more important to choose correctly from the beginning, because you’re going to end up in them if you live long enough! And you will not be gleefully looking forward to moving in to them in most cases.

Dejunking this house/Selling this house – a difficult pair of things to do requiring millions of decisions which we can repent of at leisure.

And the very worst of all

I resent not being able to work myself out of the current many holes. A lady doing the fast walking jog many people think is called ‘running,’ but won’t mess up her hair or get her too sweaty; the man with the white ponytail and the limp who goes out for a painful walk regardless of the temperature or conditions most days; the children – especially the one little grandson who spends HOURS trying skateboard tricks or shooting baskets when he visits next door – all these people are ‘working on it,’ my standard response when asked about anything, but they are actually working on something.

Me, I’m stuck. I get one little thing done, painfully, and the ‘things needing doing’ merely provides the next customer in a Black Friday-long line.

I gotta get out of this place, but it may end up being the last thing I ever do, at this rate.

I make a list, read it, pick one thing to do. It is the A1 now, and the system is to get it done, because it is the log that is holding everything in a jam. But I’ve been telling myself that for weeks, months, years – and it’s a lie. There’s always another. When do you know if something is real or just depression talking?

What’s the answer? Is there a solution? SATURDAY

I’m hoping so. I’m hoping it is to focus on all the little good pieces:

the last message from the online pharmacy was that they had approved my prior authorization – without any further calls from me to them OR the doctor’s office; they may even manage to send me my perfectly legal, non-narcotic, non-opiate pain pills without me having to chase them down, and possibly even repeat that twice more in 3 and  months. Meanwhile, I pray the generics figure it out.

I am much further along in the estate-settling – and can’t do anything further this weekend; I hope I have figured out the way that doesn’t require exorbitant taxes.

I think that ‘we have to get out of this place’ has finally penetrated – we’re both quite tired of the continuing stream of maintenance, and the computations are almost done; a trip to California may be in the offing (let’s hope I survive!).

I may have located the cause of a couple of physical problems – that would be a lovely set of things to remove from my life.

And my standby solution – rest and reset the brain – still seems to work. Happy weekend – I’m going to go use it now.

And maybe one of these days I’ll learn to advertise…

One for my side: Google confirms I can spell pretidigitation and know what it means!

How’s your weekend going?

And thanks again to Stencil for the ability to make images out of thin air.