Tag Archives: Life

Lockdown is increased following covid-19 spikes

Part of Alicia's face with pool in background

THE FIRST WAVE ISN’T OVER

The requirement for reopening our facility in any small sense was that our state, California, needed to meet the parameters for reopening.

Our Yolo County authorities issue rules which must be followed by businesses, depending on the state guidelines.

A few weeks ago, on June 9th, a gradual, cautious reopening of our dining facilities was initiated, allowing those who chose to participate the ability to go to the dining room for dinner. Many changes were instituted to get people in and out of the dining room safely (most of which would have been too hard for me), but not allowing the kind of socialization we used to have of dining with others not of our ‘household.’

The reopening has been rescinded due to spiking coronavirus cases

I can’t blame this facility for taking every possible precaution – after all, one of the things that happens is that our total survival as a community depends on getting new people in to what is a ‘forever home’ as our older or frailer members leave us.

And reputation is everything in the business world – we can’t afford to have too many empty apartments or the price for the residents will have to go up.

And it is obvious that people will think long and hard before moving INTO a facility that has already had covid-19 cases.

The restrictions are necessary

because the outside world refuses to take the pandemic seriously – but we know how high our death rates would be if it got into our community and spread.

That’s not even a hypothetical: a third of covid-19 deaths, or more, have occurred in people in nursing homes.

And a CCRC (Continuing Care Retirement Community) by definition has a nursing home component (as well as an Assisted Living one) to go along with the Independent Living apartments (where most of the residents live, and where everyone who is part of the community must come into originally).

Lowest common denominator for the community is that EVERYONE is in lockdown.

Because we live in the same building. And are served by the same staff for many things.

I live in fear that our staff OR our residents may bring the virus in

Residents here often (>60%) come from Davis. They have local family and friends.

We can leave the community at any time – at our own discretion. We can see anyone we want – outside.

There is a requirement (probably from the county) that those who sleep one night or more away from URC then self-quarantine for two weeks when they come back.

But it doesn’t cover those who go out for the day for whatever reason, and come back the same day.

We depend on each other being sensible – including our staff, ALL of whom live elsewhere.

So I practice ALL the precautions

So that even if other people don’t do what they’re supposed to do all the time, every time, I have done everything I can NOT to pick up the virus from them if they have it.

The biggest one is that people don’t cover their NOSE with their mask.

They might as well not bother wearing the mask!

It slips down. It’s uncomfortable. They ‘forget’ – and it horrifies me.

I remind them.

They put it back on, and I see it slip off again a moment later!

Staff, Residents, Contractors here installing carpeting – they still don’t get it!

A facemask worn with the nose hanging out is NOT a facemask! Basically, it’s NOTHING – because someone having trouble breathing through the mouth behind the mask will automatically breathe through the NOSE – expelling ALL the air from their lungs through their NOSE out into the community.

Sigh.

I blame education which doesn’t teach every child that their NOSE and MOUTH are connected inside their HEAD.

Among other things I blame.

So I’m horrified, I tell them (they sometimes pull the mask up over their nose and I often SEE it fall down immediately), and I wear mine, stay away, wash my hands…

And try very hard not to leave the apartment.

A small positive note

The county has allowed limited pool access, and limited aqua therapy with a ‘medical’ person present.

So I got into the therapy pool twice for half and hour this week – and am still in a lot of pain from things I stretched, very gently, but which had had no warm water for over three months.

I may not be able to go twice a week (Tuesday and Thursday are too close together).

They may close it back down for whatever reason.

I got no writing done on those days, nor the days after (another reason I may have to do just one).

But the good feeling was amazing: in the water I am not disabled.

In the water I can move, stretch, even go up to tiptoe (in the deepest part of the pool) – things I cannot do very well or at all on land.

I am grateful.


So what has gone well in spite of the virus in your life?


 

Nobody does anything about the weather

A red adult tricycle on the Davis, CA, greenway, with the wildlife refuge behind her.

Trixie, my trike

YOU CAN’T SEE THE WIND, BUT IT’S THERE

It is curious to me that it can get so very hot for a week or so – and then go back to reasonable, at least in the mornings, when the world is still heading into summer.

As the world goes around the sun, it gets hotter in the summer and then colder in the winter, but the small variations from day to day often seem to come from nowhere.

The husband has a touching belief in weather predictions. He thinks that what they say will happen, will happen, and seems disturbed when it isn’t dry on a day he intended to put down fertilizer that required dry grass.

Me, I believe, maybe, what’s happening in front of my nose.

Today’s trike ride temperature was supposed to be a balmy 72°F – but it was very windy, and the shorts and short-sleeved shirt I wore could have been replaced by something heavier, especially since I tend to slow or stop a lot because I’m trying not to exhaust all my energy – and lose another writing day, an all-too-frequent occurrence.

I had a bad night Sunday night – so I didn’t get out for my ride yesterday, because by the time I got up (9:30), it was already way too hot for me.

So I was extra careful this morning, and managed to go for a ride while the housekeeping ladies were here, and got blown around more than I had expected.

I had to change my route

Davis landscaping crews have altered my last two rides. I don’t know why they have to block the entire greenway path for longer than two vehicles. Most times you really can’t change the route you’ve chosen, because you can only get on and off the path at given intersections.

However, walkers and runners, even with dogs, can just slip around the trucks and trailers. The trike and I are much wider, and not really suited to going on grass or slopes – which also take more energy to navigate.

So, as I came upon another blockage this morning, I had to figure out how to get home on city streets I don’t usually use.

And it was somewhat longer. And I am more wiped out than I planned.

But getting out is necessary.

I just hope I can recover enough to finish 28.5 – I finally figured out how to handle what could have turned into a plot hole, and then one more (28.6), and Chapter 28 can go to the beta reader, the lovely Rachel.

It is frustrating to need exercise to stay even remotely well, but to find that every single trike ride can cost me a whole writing day. There’s got to be a happy medium in there somewhere.


How has the weather altered your current planning?

Are you going to watch the livestreaming of the Summer Solstice at Stonehenge on June 20 and 21? The kids and I intend to.


 

Creating a new normal from debris

This morning, while the husband had gone to the grocery store on the URC bike to get the few things we need to supplement the dinners here, I spent a half hour singing.

With Kate Wolf, on Green Eyes.

And with Gordon Lightfoot, Sundown.

The first I had never sung; the second, I remember singing so many times back when it was new, I was in college and grad school, and had joined the Columbia Record Club, and had several of his records.

It is easy to let things slip when under a pandemic

I didn’t realize how long it had been since I sang.

Apparently, going to church on Sundays, plus starting an hour-long, twice a month folk-singing group here at URC had been enough to keep my vocal chords in working order, even tired. Each time, after an hour, I had used my voice, and it seemed okay and I was happy with the quality of the sound, happy enough not to give it another thought.

Well, it has been months since I did that kind of regular singing (forgive me, Carol, singing teacher, for not singing every day).

And when I tried to sing about a week ago, it was as if someone had stolen my vocal chords and left someone else’s unused ones in their place.

It was scary. The singing voice was almost paralyzed, and nowhere near what I had come to depend on whenever I wanted it.

So there’s one more thing I have to maintain consciously

The list is getting very long.

Every day, before I can get to sleep, I have to put all my joints through my little stretching and range of motion exercises – or I twitch so badly sleep is impossible. Literally. For hours. Lying there in bed, twitching as if hit by a cattle prod every 5-10 seconds. And now I also have to get up and eat something so my stomach will let me go to sleep.

None of this body stuff used to be my responsibility (except weight: as I’ve said many times before, I do not understand why I should have anything conscious to do with maintaining the right body weight – I don’t have to remember to breathe or make my heart beat!).

I’ve given up complaining – it doesn’t help. When I realize I’m twitching because I didn’t do my exercises, I force myself to lie there – and do them.

When I realize what has woken me up at 3am is that my blood sugar is crashing, I get up, eat a half cup of cottage cheese, and then, while my brain’s blood is diverted to digestion, quickly lie down and get back to sleep.

The demands of the body are nonnegotiable

Insistent.

Immediate.

And a pain in the neck.

But I develop another heuristic, another shortcut for dealing with the new problem, pay attention for a few days or weeks, and put it on the list of ‘things that must be done.’

And I fear when someone else must take care of me, because they’re not going to have the ability to do the necessary actions the instant I need them, and I’m going to spend a lot of my time uncomfortable and not able to do a thing about it.

What a life!

One more consequence of the lovely gift we’ve all been given is to watch it go away.

How to deal?

ME/CFS? Aging? Luck of the Irish? Who knows.

I try to let it take as little of my time and life as possible.

Not complainin’, just sayin’.

And I do whatever I need to keep writing.

While watching the appalling stuff burbling out in our society that has long been suppressed. And trying not to cry.


What is on your list? What are you in charge of that you never had to worry about before?


Thanks to Stencil for the ability to create graphics that are more interesting than the words I throw into them.


 

Do the right thing while you still can

SOMEONE MIGHT NEED TO HEAR A KIND WORD

The poem Maud Miller was quoted in Thomas R. Lounsbury, ed. (1838–1915). Yale Book of American Verse.

John Greenleaf Whittier died in 1892, but his words have resonated.

There is something valuable in using the current world crisis to do things you should have done, now, before the opportunity is taken from you.

This week I wrote a ‘thank you’ letter

I have been mulling it around in my mind for months, because it had the potential of turning into something else.

I finally gave up on the ‘something else,’ which has been, and still is, an unformed request for help of an indeterminate kind.

And that was the holdup: I couldn’t figure out what I wanted to ask for, and it wasn’t clear how. Sometimes that confusion means something: don’t do it.

But eventually I realized that right now, a thank you note out of the blue, when someone is quarantined and disconnected from office routine and usual sources of affirmation, might make the day bright for a person who, through his work, has made my life easier, and my writing better.

With my slightly increased brain function and the pressure of ‘what if something happens to either of us,’ I had a moment of energy, and quickly sat down to put words to page. Added a short handwritten note (the handwriting had been held up by the damaged right shoulder – thank you notes should probably be written by hand), and sent it off.

Now every time I remember the help, I can feel good about having sent the note – instead of guilty that I should, really, and haven’t figured out what to say. It’s DONE.

This week I sent a tough letter to someone

My, how many ‘somes’ are showing up in this post!

But the writings are private, though the insight might be useful, so they cannot be replaced by proper nouns, and can’t even be granted common nouns, so you’ll just have to see if this is still useful.

One of my favorite parts of the John D. MacDonald Travis McGee stories is Meyer’s Law, which for my own purposes I usually remember as ‘Whatever the hardest thing to do is, that’s the right thing to do.’

My ability to quote correctly is legendarily bad – here’s the Google result:

John D. MacDonald — ‘In all emotional conflicts, the thing you find the most difficult to do, is the thing that you should do.–Meyer’s Law

And I am dating myself! The stories are from the 1960s!

Detour aside, this was something that, if our positions were reversed, I would have appreciated getting from the other person. But the contents were very deep, and I greatly feared adding to the other person’s pain.

But Meyer would have been proud of me: I decided it was her RIGHT to know, and that she could deal with it however she wanted to, but I couldn’t forgive myself for not giving her that choice, however painful.

I’m glad I did and she thanked me, and it will probably be the last time we ever communicate, not because of anything bad, but because the contents were the result of our two lives touching over something (here we go again with the somes) which will never happen again.

I promise not to forget, as long as I have memory. And that has to be good enough.

The results are that now I can move on

Every time in the future either topic comes to my mind – which will happen – I have closure. I did what I needed to do. The actions are in the past instead of in a vague future.

And I did the right thing.

For the reference: it hurt as much as I had expected, maybe more – and I can take it.

I see too many books now with this as their foundation

A person in the present turns out to be haunted by something they did or didn’t do in their darkest past, and the future is forever colored by avoiding the sore topic – until something explodes.

I don’t like this trend in novels – everyone has a horrible deep dark secret. An event in the present (usually a death – or a missive discovered from someone who died) results in digging into the past, and explosions ensue.

It is true that times were different before, that things that can be revealed now – a secret marriage, a child given up or adopted, a wrong to someone’s life or reputation – might have had much bigger repercussions ‘back then,’ and we’re more able to survive the revelation now than when it happened.

‘Do it now’ stops future pain – for me

But the present state of uncertainty in our real-life lives makes me hope I don’t get to the end without doing what I should have done.

I have a few more of these to clear up, and then I’ll be free of that particular kind of regret.


 

 

 

 

Testing the new block editor tentatively

Water drops. Text: How to survive Boredom. Not very well. Alicia Butcher Ehrhardt

THEY TELL ME JUNE WILL FORCE USE OF THE NEW EDITOR

So I’ve decided to test it out while I still have room to run and scream if I don’t like it.

So far it seems very much like the old editor, except with new controls – which I don’t know yet.

I don’t even remember creating the graphic above, but it’s in my media file from my days in New Jersey, so I probably did.

I’m getting a bit more energy from my low-dose naltrexone.

ldn works differently from medicines.

It blocks opioid receptors in your brain for a couple of hours, during which your brain decides something’s wrong – and creates more of them.

This leads to more endorphins, and other things happen, so you find yourself dealing with generalized inflammation as well.

Some people even think it will help deal with the coronavirus; I’m not going to test that deliberately, and don’t know how I will tell that I have or haven’t, but it’s a good thought. Anything that helps.

I’m also getting, a lot of the time, less brain fog

This is the main reason I’m interested in it: in these thirty years I’ve had ME/CFS, I haven’t found anything I can DO to reduce brain fog, and have had to wait every day to see if my brain would kick on and be usable.

Then I’d have to make sure whatever functionality showed up that day wasn’t needed for something critical in life, which is why I did very little writing when we were moving and packing and sorting and dejunking and dealing with real estate agents (theirs) and lawyers (theirs) who didn’t do what they said they’d do or when they said they’d do it, even though the contract clearly said we could dump the whole idea if they didn’t.

My top level functionality hasn’t improved

but I think the bottom level may have come up a bit.

The most notable effect, after taking a year to slowly titrate the ldn up to the therapeutic dose, is that I seem to spend more time every day toward the higher end of the functionality my brain is capable of, and get more done in that time.

And it seems to come every day, which was something I couldn’t count on before.

In fact, I was doing prep work for today’s writing around midnight last night – something that, trust me, never happens. I’m usually dead by 8 or 9 pm, even though my brain refuses to admit it and allow sleep.

Objective measurements?

Four finished scenes in the last two weeks – absolutely unheard of.

It still takes a lot of time to do what I do, but I’m spending more time per day doing it, so it is taking fewer days to get in the necessary time.

As my friend MT would say, Woo hoo!

And other than finding it slightly annoying, I’m not having any trouble making the new block editor do exactly what the old editor did, which is a few headings, some paragraphs of text, and image or two, and

Wait a minute. Where did the categories and tags go?

There they are, under a tag ‘Document’ up at the top of the page.

So far it is twice as many steps to select a heading style for a block of text. Annoying.

There is still a link ‘Switch to Classic Editor,’ which I will use until it disappears, but this was not that hard to figure out – for my simple blogging needs.

Which I’m pretty sure won’t change until five years or so from now when they decide to edit the editor again.

Oops. WAIT. Where’s my horizontal separator line?


This exercise has taken me to the ONE UNFORGIVABLE SIN of an editor, eating my text.

The previous one SAVED everything as I wrote.

Now I have to do it manually.

VERY BAD EDITOR.


It’s a thermostat not a bank account

Skyport

THANKS FOR MAKING MY THERMOSTAT HACK-PROOF

Sometimes the modern world is just SILLY.

When we got our first wi-fi accessible thermostat, years ago in New Jersey, I thought the concept was silly. But the thing needed to be tweaked many times to keep us comfortable (okay, me comfortable – the husband doesn’t notice a range of temperature of at least 20°F), so I found it convenient to be able to do so from my office, without having to go down to the dining room, which was at the far end of the next floor down.

This was a time when I was often having to drawl back upstairs due to back problems, so the wi-fi enabled thermostat was a convenience.

But we’re in a two-bedroom, one-floor apartment now

and it is fewer than twenty steps from my desk to the thermostat by the kitchen.

Nevertheless, we got the wi-fi enabled thermostat because it was the only one available that would let us keep the apartment comfortable by allowing a RANGE of temperatures, instead of just cooling and heating settings.

Yup. We looked for a long time, and couldn’t find, in most thermostats, the most obvious necessity for a thermostat: the ability to go through a California day, heating in the morning, and cooling in the afternoon during the summer, without having to switch manually from heating to cooling or back. Every day.

So. We got the fancy one.

And it came with an app for the desktop (and one for the mobile phones – but that’s just ridiculous).

And it requires an account.

And a password.

Keep in mind that this is a SINGLE thermostat

for maintaining a SINGLE heating/air conditioning unit in a small apartment.

To keep me from walking fewer than twenty steps.

Because, even though it’s the fancy one which can maintain a RANGE, it still needs tweaking by a human, during the peak heating or air conditioning seasons, several times a day.

So I created an account, and a login, and a password – probably 6-8 characters.

And today I get this letter.

So I’m venting here about the ridiculousness of the whole concept of needing a 12-digit password and all this rigamarole for a THERMOSTAT for an apartment.

Because I doubt that if I write to the company they will take me seriously (and I’m not taking them and their 12-digit hack-resistant thermostat seriously).

And I cannot imagine why it is necessary, and I thought it would amuse my readers.

The thermostat can handle far more than our little apartment, and has settings for zones, and several stage AC units, etc., etc., etc.

And I still can’t imagine why it needs a non-hackable password.

Oh, well.


I should mention the thermostat does work, after I do all that tweaking, and that the tweaking is probably necessary because of the stupid place the thermostat temperature sensor was installed – probably right next to the thermostat – something over which we had NO control, but I know I will have to go through this procedure whenever they tell me to, and this is my revenge on people who waste my time.

And yes, I know I’m wasting more, but it makes me feel better about the future.

Plus I haven’t blogged for a couple of days from the inside of the CCRC in total lockdown, and small things can be annoying. Such as losing your 12-digit password.


 

Too tired to post about ME/CFS yesterday

Image may contain: possible text that says 'MYALGIC ENCEPHALOMYELITIS (ME) MILD ME 25% CAN WORK WITH GREAT DIFFICULTY AND AT LEAST 50% OF THEIR FUNCTIONALITY. MODERATE ME ARE HOUSEBOUND OFTEN REQUIRE A WHEELCHAIR OUTSIDE OF HOME. DAILY TASKS LIKE BATHING AND COOKING LARE A STRUGGLE. VERY SEVERE ME ARE TUBE FED, IN SEVERE PAIN, OXYGEN AND OFTEN CAN NOT SPEAK. SOME AWAY. THEY ARE SOME THE SICKEST PEOPLE ON EARTH. SEVERE ME BEDBOUND IN DARKEND ROOM ALMOST COMPLETELY DEPENDENT FOR ALL PERSONAL CARE. MEICFS AWARENESS @CHRONICALLYRISING'

MISSED EVEN WRITING A BASIC POST:

MAY 12th WAS INTERNATIONAL

ME/CFS AWARENESS DAY

So today, a day late and many dollars short, I’m boosting a post from @ChronicallyRising on Facebook, which will give you an idea of what I live with.

For over THIRTY YEARS now, I have been in the very badly mislabeled ‘moderate’ category – with occasional good days where I’m lucky if I have lost ONLY 50% of my functionality.

Because this is my daily reality, I don’t make a big deal about it.

I have used my experience with the disease

to write the on-going Pride’s Children trilogy, where I have gifted one of the main characters, Dr. Karenna (Kary) Elizabeth Ashe, with the ‘mild’ form – and explore how being chronically ill affects your whole life and all your choices.

When you lose your entire medical career, ‘mild’ is a misnomer.

Society writes you off; it did her.

She learned to write – something I’ve done. But I’ve given her a better experience and a traditional publisher in 2005. She’s turned into a reclusive but well-loved author of several historical novels, by spending ALL her energy on her work (since there is no way she can be a physician any more).

And living alone.

She is much younger than I am – in the ‘adult woman’ vague category.

And there’s nothing wrong with her – except disease and society’s expectations. And how much she gives in to them.

The world may find out

after covid-19 slams through its entire population, that the incidence of this kind of a post-viral, post-survival of the acute phase, syndrome, is far more common in the pandemic’s aftermath.

It is speculated that a large proportion of the survivors will have life-long problems. Numbers are not available this close to the outbreak.

Maybe my stories will help those who are ignored by the healthy, the researchers, and those who fund public health initiatives – until it happens to them.

We are all still people, still worthy, still capable of pain and loyalty and love.


 

Jeweled anniversary moments in the midst of pandemics

Trolley with white tablecloth displaying our anniversary dinner

Our 45th Anniversary Dinner – courtesy of dining staff

OUR GRATITUDE TO THE DINING STAFF

Before the pandemic, gracious living was the touchstone of the University Retirement Community we moved to as our forever home.

When the staff called a few days ago for an unrelated matter, it occurred to me to ask is there was anything they could do for our 45th Anniversary, as we wouldn’t be able to celebrate otherwise.

And this was their lovely response yesterday.

Chicken teriyaki and a special dessert enhanced by notes wishing us well from several of our staff.

A shoutout to those working behind the scenes, even now

It is not easy to bring dinner every night to the 250 Independent Living apartments (and three meals a day to those in higher levels of care).

The last time this was done, a norovirus had invaded, and the lockdown resolved the matter in less than two weeks – complete isolation and a prompt response does that.

But this time they have been working harder and longer, and we have lost the lovely daily interactions with staff which are so rewarding – finding out about their schooling and families is part of here, and there is a scholarship fund and an employee appreciation fund we contribute to (tipping is not allowed) to make our thanks patent.

We miss them like crazy.

They are doing a tough job, and any time we interact (rarely and in masks now), it is a pleasure to have the younger people on staff around.

Management has a different job

Keeping us safe and fed and supplied and from going bananas those of us who need help.

Keeping our campus safe and only open to essential personnel.

Figuring out what to do in the immediate and long-term future.

I wouldn’t want to be them right now – it must be scary, knowing how so many vulnerable people who will live many more years if the virus doesn’t get in here are in their care.

Easy to criticize, impossible to replace.

Yes, they might do it better, but I don’t think it’s pure luck that we’re still functioning, though it might be luck that we haven’t had a scare yet.

But I don’t want to neglect the bright spots

The gardens.

The ability to go out onto the greenway.

Their determination to follow ALL requirements of the various governmental agencies – and do whatever more can be done.

And the little happinesses like ours, yesterday.

Thank you, URC and PRS. We notice and are grateful.

PS The cake was really good.


 

The physical cost of writing fiction

Rose bushes in a garden with shady trees.

The Rose Garden at University Retirement Community

I’M PLANNING TO WRITE A NOVEL SOME DAY…

Say many people. Most of them don’t.

I’M NOT DISCOURAGING ANYONE! But I haven’t cloned myself even once: when people expressed interest and I offered to point them in the right direction, none followed up.

My oldest is writing fiction – I get an occasional peek. That’s all.

Why? Because it’s a lot harder to do than most people realize. Lots of words, and they need to be in some kind of a comprehensible order.

It’s on the order of thinking you might be able to build a car because you’ve driven lots of different models. Or even because you’re actually a pretty good mechanic.

Different set of skills, and the finished product DOES NOT SHOW where the tools were applied.

I’ve produced two completed novels in two different series

but it is not likely that the first one (a mystery written before the turn of the century) will ever get the attention it needs to be turned into a finished product, given that I’ve learned a few things this century. Maybe, maybe not. The more I learn, the more I realize it need a lot of work. Great characters, I thought, and a good end and premise, but we’ll let it live peacefully for now. In the trunk.

The first one in the Pride’s Children trilogy took me 15 years, many of which were spent learning such things as how to write a full-length play (great for dialogue).

I’ve aged, and have not gotten well

Thirty years of ME/CFS is a long time, and during that time I’ve had at least the usual vicissitudes of aging, and probably even more than average because the energy to exercise, for example, isn’t there – thirty years of no real exercise (because we can’t go aerobic – our cells don’t produce energy fast enough) leaves you deconditioned, even if you’re diligent at doing what you can (bike/trike rides, pool exercises).

That’s one of the reasons it takes me so long to write: the energy has to come from somewhere, I’m chronically ultra-short of energy, and other things in Life have to be done, too.

I’ve pared away and given up almost everything. The pandemic is forcing me to relinquish even more: at the same time it is giving me a bit more time, it is increasing the stress – never helpful.

Most people don’t think of writing as requiring energy

They’re more likely to think it needs time, because how hard can something be that you do sitting down?

They know it gets you tired – mentally tired – and that you need to keep your body in at least reasonable shape to support your brain’s work.

But beyond the obvious, most don’t realize that writing fiction is exhausting under the best circumstances. Physically exhausting.

I can’t, apparently, do two energy-sucking things in the same day

I can count as rarities the days when I do something physical first (like a trike ride, or even a trip to the front desk on Maggie a couple of times to get a package in the mail in the right sized container with the correct postage).

I used to get around this problem by doing my writing first, and then going for a ride in the late afternoon, or for a swim AFTER writing (since I never get anything done in the evening anyway).

But there’s no pool Yolo County is allowing us to use, and the days are now so hot (though not humid, bless California!) that I can’t afford to go out after a certain time. This is because California starts off cool, and then heats from the sun straight through the day. Without humidity most nights cool off, but on a day over 90° like today, if I don’t get out by noon it’s already too hot for me to be out.

My physical body is a real limitation

to my current writing. I just don’t get the hours of functioning usable brain that I need, and days will go by when no writing can get done.

I’m doing – and will continue to do – the best that I can.

That’s a given. Non-negotiable.

But I’m wondering exactly how low I can push ‘taking care of body’ vs. ‘using body to support brain.’

So the rest of you?

Maybe you should get started on that novel, and not depend on retirement, or ‘when you have more time,’ because I’m here to tell you the physical part of writing keeps getting harder every year.

And there’s NO guarantee something won’t come along and knock you clean off your pins (must look up that phrase), and you won’t be able to do it at all.

As for me

I keep trying to cheat, and figure out ways to NOT do things, so they won’t absorb the little energy I have.

My long-suffering husband keeps not complaining. He gets points.

The mess will have to wait some more.

I don’t know how long it will take – I hope days, rather than weeks or months – to get the next chapter through the last little bits (epigraphs and chapter title and a final round of AutoCrit). I only know that I keep inching forward, and I’m still excited about the story (this chapter was a doozy), and I hope I’m still around to finish this job (there’s a virus out there that eats older people and people with co-morbidities), because I still haven’t found anything I love as much as this little obsession of mine.

Thought I was improving a bit, but not really. Shrug. It won’t stop me, but it sure slows me down.

Oh. And I’m grateful. It could be a lot worse.


Stay well. Wash your hands. Don’t touch your face. Etc.


 

The mainstream literary pleasure of highly literate readers.

STUCK WITH THEIR HEAD IN A BOOK

That’s where the young readers are, when they can get away with it. I was.

I kept books in three locations in our house in Mexico City, and snuck around so my mother wouldn’t find me and want me to do something – but I always had a book. In English. Of what was around the house, including my parents’ collection of the Great Books (only the half I liked) plus the James Bond novels and such my father brought home from business trips..

It is like an addiction, pouring words into your head.

Many people learn the pleasure of reading later – and do perfectly fine with it. But there is a subset of humans who are bookworms from a young age, and once they discover the printed word, can’t get enough of it.

My readers tend to be in that group.

Figuring out words in context is a big part of that

If you read material that is probably too hard for you, you’re going to run into words you’ve never seen before. That’s when the vocabulary starts to build: you don’t understand the sentence a word is in until you have some tentative meaning for the word, so you guess, store it away as a ‘possible,’ and move on with the story.

Do this enough times, and that word will get its meaning altered a tiny bit each time you run into it, because each place you see it will give it context, and eventually most words will have a complex meaning that settles pretty close to what you’d find in a dictionary.

Or you could ask someone (mom, teacher…) or look it up, and nowadays touch it on your Kindle and have the meaning pop up, but all those things take more time and interrupt the flow of the story, so many of us reserved that for rare occasions, and just kept reading.

The literary mainstream novel

English is an incredibly rich language (we steal anything we don’t have, and, voilà, it’s English now), and I can find the perfect word for most applications – with the nuances I’m looking for.

My readers don’t need anything explained: they either know it already, or they will be fine figuring it out in context.

Mind you, I’m not looking for the truly ‘literary’ one-of-a-kind only an English professor would know them words.

Just the words that I’ve acquired from all those books I’ve read – without paying specific attention.

The only ‘class’ I’ve ever taken in ‘English’ was the Freshman English course I took when I transferred as a junior from UNAM in Mexico City to Seattle U., which it turned out later I didn’t need to take.

That class also got me to write the only term paper I ever wrote, something wild about the psychological significance of Wuthering Heights, and for which I immersed myself in the literary criticism journals at the SU library, which had articles such as ‘The Window Motif in …’

I had fun, I got an A+, and never before or since was exposed to language that way.

I am not a literary writer; I’d have to have an entirely different background for that, and it wasn’t my path as a physicist. At this stuff, I’m an autodidact. They’re at an entirely different level.

Pride’s Children is just where it all came to roost.

They said, “Write the novel you want to read, and can’t find.”

‘They’ were right. It has been great fun just letting a novel be what I wanted it to be, and using everything stored in my very odd and now damaged brain exactly the way I want to.

And my readers like it!

That’s such a charge.

Here are some of those words from Chapter 27 of Pride’s Children NETHERWORLD, which I just finished writing, and am now polishing up to send to Rachel, my wonderful – and omnivorously trained like me – beta reader. AutoCrit, my editing assistant software, flagged them as ‘uncommon in general fiction.’

  • interlocutress
  • verandah
  • malevolence
  • illusory
  • epigraphs
  • attribution
  • obeisance
  • dopamine
  • quintessence
  • scrupulous
  • galvanized
  • volition
  • tableau
  • pragmatist
  • modus operandi
  • bafflegab
  • choreographed
  • Janus
  • excoriated
  • impeccable
  • preternatural
  • demotion
  • demonstrably
  • asunder
  • pique
  • bawdy
  • Uttar Pradesh
  • pachyderm
  • impunity
  • wafting

Not really that tricky, are they?

But you don’t hear them much, and they like to get some attention, too.


Thanks again to Stencil, which allows me to create graphics with very little effort – and wonderful photos. When I need more than a few a month, I will definitely get their paying version. Meanwhile, I mention them here every once in a while, in case others need the same capacity.


 

The enervation of being unable to plan

IT FEELS LIKE A BLANKET OF LEAD

I signed up to refresh my French at Duolingo.

Every day they nag me to do the 5 minutes I signed up for.

I usually do more once I get there, but it is like lifting boulders to get myself over there and start.

Yes, I will look back when this is over (assuming I survive), and wish I had spent my time better, but…

But…

I will be better once my head clears.

Two days ago, I was struggling with a scene. This is normal for me: they don’t come easy, but I don’t care – it’s work I love.

Getting started writing every day requires a brain, and I struggle for hours most days trying to find something (other than time) which will encourage that brain to turn on.

And yes, I’ve tried writing when the brain isn’t on – pretty similar to making mudpies, for all the results.

Back to the point:

Two days ago I had a reasonable working day, got half the current scene into shape.

Yesterday, after two days of NOT riding the trike, I decided I had better get out there before I start making monkey noises, and went for a short trike ride around the greenway.

Except that we’re into a hot week, which means I can’t even go down to the garage to hop on the trike after about noon – because the garage is so hot I can’t function.

So it had to be in the morning.

And riding in the morning meant I was severely brain fogged the rest of the day, and could simply NOT focus.

I haven’t had carbs in days

Eating carbs usually results in me being brain fogged until the residue is out of my body, and I’m once more working on fat and protein. I haven’t been as strict with myself in the past, and it is REALLY hard not to have the only good dessert the dining staff sends in a week – after all, food is our only comfort provided by the facility now, and the lack of choice is getting me down.

But I’ve made the effort, and I can’t blame the current situation on carbs.

Today is merely the result of yesterday’s trike ride, as was all of yesterday afternoon and evening: having ME/CFS MEANS there is no way to get the energy back.

Not being able to do anything is also a sign of depression

in normal people.

We’re used to it, but I have to ask myself if I’ve let the situation and my limitations bump me into that territory.

And then I have a day in which no interruptions occur, and I keep my nose to the grindstone until it finally sharpens enough to write with, and I know it’s not discipline – it’s the disease.

What it is is a sign that I can’t expect to get a writing period on a day I go out for a mentally-necessary trike ride, which is in itself frustrating.

I can’t plan around it.

There is no plan C. I ride OR I write. And if I go longer than a day or two without writing, my brain seems to think we are doing something new, with all the Resistance to starting that comes with new things.

If you wonder why it takes me so long, that’s part of it.

The pandemic is just more of the same. A lot more.

Don’t worry about me, because I’m still doing this: there isn’t anything else.

But it gets pretty frustrating each day to have all this time – and not be able to plan or to count on myself. For purely physical reasons I can’t control.

I just hope I finish these books before the virus gets me.

Oh, and put on the list somewhere the end of the story – for those who might care – if I don’t make it.

Can’t plan that, either. Making it.


It’s hard writing one of the most emotionally powerful scenes in the novel from a place of such flat affect. The first half is great (IHNVHO), but I want the second half to hit you in the gut, too.

So no trike ride for me.


 

The tiny start of each new day

WE HAVE IT EVERY DAY

I realize it’s become a little routine, getting going in the mornings as efficiently as possible, so I’m recording it to laugh at in the future.

Mind, this is me ALWAYS – and has little or nothing to do with the coronavirus.

It might amuse you.

There are many steps (beyond the obvious first one):

  1. Find brain – it’s in there somewhere
  2. Do anything that absolutely must be done before you even turn the computer on.
  3. Turn on the lamp in the corner from the switch by the door.
  4. Say my morning prayers – even though I rarely remember the promises I made.
  5. Turn the overhead light on from the control on desk I can reach from the bed.
  6. Move to the desk chair.
  7. Turn the big monitor on – and make sure the switch goes to blue (behind PostIt so it doesn’t affect my sleep by being too bright).
  8. Lift the lid to the Macbook. While waiting for the screens to come back,
  9. Reach for phone, and plug it into the charger (I don’t charge overnight because I need it for a clock in the middle of the night, and a flashlight)
  10. Critical: reach down and turn the power strip with the two bright green lights ON
  11. Now it’s okay to turn the desk lamp on (with a touch).
  12. Open the venetian blinds and the shade to let the light in.
  13. Pills: take morning ones, set the later ones out.
  14. Check the email.

The reason for waiting to do 11. until 10. is done is that I keep forgetting to do it – until my Macbook suddenly shuts itself off and goes blank.

And when I look, and the two green lights are NOT on, I realize I forgot – and the battery went to as close to zero as the Mac allows, and I DID IT AGAIN!

So I’ve linked them deliberately.

After that come the optionals:

  • Diet Coke #1.
  • Breakfast (but that can wait for hours if the brain is on and I want to try using it first).
  • Water and ice for the HydroFlask tumbler I sip from all day long. Cold!
  • Facebook, quick answers to anyone who seems to want one.
  • The Washington Post, and The New York Times – quick scan.
  • Load up a page of sudokus – hard – for when I block the internet.
  • Check the calendar.
  • Check the To Do list – maybe – not good with that; stuff gets done, but not in an organized manner. Occasionally, clean the list, remove stuff already done.
  • Extra Vitamin C? Extra painkillers? Extra liquid B12?
  • Checking if any books have sold on Amazon overnight, or the nice person who took it out of KU has read any more pages.
  • Check The Passive Voice and Writer Unboxed; comment if I feel like it.
  • Think whether it’s been long enough that I should consider watering the twin coffee plants and the flowery thing.
  • Open the living room blinds that let me see out from my office past the living room, somewhere into the distance.

And finally, if I have any energy left at this point,

think about what I might need to accomplish today.

Think about adding an energy-draining shower to the list for today.

Including whether I both need and can afford to take a short trike ride for mental health and a tiny bit of exercise, like today – if so, try to remember the ritual associated with that now – from taking the cellphone and the locator bracelet for emergencies, and the keys, and the backpack, and water…

There you have it – boring as all get out, so I try to do it quickly, so I can go on to procrastinating from writing by thinking about writing.

Oh, and worry about the coronavirus, COVID-19,

and whether we’re still going to be safe, here in our total lockdown at the CCRC.

But that one goes without saying.

All this is so I can get to the real reason for getting out of bed:

  • Working on the current/next scene in Pride’s Children NETHERWORLD.

Which is coming along very nicely.


Do you find yourself doing the same list of heuristics every morning in the same order and playing a game with yourself to see how fast you can get past it?


 

They’ve blocked off even the swings

img 1076

Sign on a park bench in a playground area

I DON’T KNOW WHAT IT SAYS – STAY OFF?

And I don’t know because this is as close as I could get to the bench with my iPhone while sitting on the trike – and I wasn’t about to get off and maybe accidentally touch something – out there.

It makes sense. You don’t want people touching surfaces other people have touched, and possibly infected, and no one is going to go through and clean every bench and every slide and every swing, so at least you can tell people they shouldn’t touch. Anyone sane, with the small children who usually use this playground equipment, isn’t going to want to touch things which might infect the kids.

Because there are two ways the coronavirus can get into YOU:

  1. Someone who is shedding the live virus coughs or breathes in your general direction – and YOU breathe in some of what came out of their respiratory system,
  2. You touch something that has the live virus on it, and bring it to YOUR T-zone on YOUR face (mouth, nose, eyes).

That’s it.

‘Live virus’ is a misnomer; viruses aren’t alive in the normal sense: they don’t eat, grow, reproduce, and die.

You could think of them as a little poison packet, capable of doing damage in the right circumstances.

But those are quibbles. They are little blobs of Something that can, under the right circumstances, both make copies of itself, and make you ill from having had your cells hijacked to make copies of the virus, and by circulating through your body in enough quantity to overwhelm your immune system, which normally has the job of killing invaders.

It is unfortunate if you get the virus the first way, stupid the second way.

So everything is closed, and that includes the swings.

Getting out is a privilege

One I hope they don’t have to remove due to the human inability to follow simple instructions such as distancing and washing hands.

But it is discouraging to see simple things like swings for kids and park benches for all blocked off as dangerous. I can understand the kid cautions. But find it hard to understand why you can’t sit on a park bench – and then, without touching your face, go home and wash your hands.


Thanks to the person who took Pride’s Children PURGATORY out of KU this week. Hope you enjoy it – and hope you think seriously about leaving a review. Reviews are amazingly encouraging to writers working on the next book.

Stay well, all. You know what to do.


 

Easter with bunnies but no peeps

A takeout container with a sugar cookie pink bunnie and a petit four with bunnie decorations

Bunnies!

OUR STAFF CONSIDER OTHER NEEDS THAN FOOD

This is a good place.

In ordinary times, every holiday gets celebrated – and there are special meals, special desserts, alcoholic beverages (Mimosas, anyone?) for holidays.

The rest of the time you may bring your own wine and beer, or purchase it by the bottle or glass. Very California wine country, our neighbors.

The decorations are wild. Staff wear special extras. It is so Christmassy at Christmas, that we don’t feel the need to decorate our own digs.

So tonight’s dinner – which I haven’t eaten yet because I had lunch and then went out for a trike ride before dark – came with extras.

Bunnies – 2 cookies, 2 petit fours

My very favoritist thing in the whole world is the tiny petit four.

The yellow bunny and the other petit four didn’t survive to be photographed. Then I thought maybe I’d take a picture and share.

Dinner was acceptable – ham and shrimp – unless you don’t eat those, and then there were other options.

But dessert came protected by its own recyclable (5 – so not very) container to protect the delicacies, at least until they got near the person who eats bunny ears.

The day was gorgeous

It got up to 73°F, and I went out for a nice slow trike ride – I’m managing a couple of rides a week since I don’t have to save energy for the pool days. It’ll do.

I’m never going to get that much exercise, as it is contraindicated (at least getting very much is – heart not supposed to go aerobic because it can’t sustain that).

But it’s beautiful out there in Davis right now.

img 1073

which I didn’t get off the trike to get close enough to identify, but might be bougainvillea or could possibly be crepe myrtle (ours in New Jersey was that color).

StreetsIMG_1046 are mostly deserted.

But riotous growth requiring significant pruning hasn’t occurred yet.

Not very exciting, but I recognize the need to get out of the building, and onto the greenway periodically, for mental health.

Family visits with the kids, and with my sisters in Mexico, made the holiday special – we’ve promised to do it often, now that w’ve all figured out Zoom (thanks for making it free for 40 min. ‘meetings’).

Keep celebrating, keep sane, keep doing something you love

This won’t last forever, and we’ll want to account to ourselves for what we did, read, ate, and wrote.

I’m writing – the second book in the Pride’s Children trilogy, NETHERWORLD (for the hell the characters must go through at times) – is coming along nicely.

It’s about time! I thought we’d never run out of things that absolutely had to be done before we could settle down into quarantine, and that required my attention personally, but it has happened.

None of it included organizing or cleaning – so I have little to show for it.

But today marked the completion of a scene started just a week ago, which I thought was going to be almost impossible to write, but when I settled down, followed my checklists and my process, and focused only on the piece at hand – it went as it always does, right down some path deep in my brain that I can’t anticipate exactly, but includes all the stuff loaded into the ‘must go in this scene’ list – and somehow makes sense.

Don’t ask questions of your muse, lest he or she decide you aren’t trusting enough!


Hope that, amid the chaos, there are things going well in your life, even if they aren’t any bigger than a pink sugar cookie bunny – or the picture of chocolate bunnies with face masks my husband forwarded this morning from wherever he found it.


 

Stress may make you very clumsy

Section of pristine-looking carpet with toes of two socks

I can’t see the stain; can you?

SOME THINGS WORK RIGHT

What is the significance of a photo of a section of carpet?

Lately I seem to be more clumsy, especially in the kitchen.

Because standing is painful, and awkward, AND I hurt my shoulder a week ago (it’s mending – slowly, as we ME/CFS types heal), I do a lot of my meal preparation sitting on the seat of my walker (Sylvia – yes, I name things, and she’s been with me over 15 years).

The walker seat has sides, and my arms and elbows sometimes run into its frame.

And for some reason (yes, I’m paying attention in case it is a real problem), I keep dropping things and bumping into things.

It is a small kitchen.

And the pullout cutting boards make very good food-preparation surfaces.

And I try to do everything I possibly can for myself – not wanting to overburden the spouse when we hope there will be many years ahead.

So, last night I heated my dinner…

Chicken with a cream sauce, and cottage cheese.

I set out for the living room where the husband was watching TV.

I got about three steps out of the kitchen when I used the ‘F’ word, very loudly.

Our nice lightweight plates have no friction with the walker seat on which my plate rested.

And I dumped a FULL serving of chicken, cream sauce, and cottage cheese – right in the middle of that space I photographed.

If I had been thinking of y’all, I would have photographed it BEFORE I cleaned it up.

I just want you to admire that job

I immediately rescued that which could be rescued.

Removed the rest of the larger bits with paper towels.

Fortunately, yesterday morning was housekeeping day – and everything had just been vacuumed (could have been – and was – FAR worse before they decided to give us housekeeping back).

Then I got out what our eldest has recommended, Woolite pet odors etc. + OXY, cleaner.

I sat down on the rug.

I followed instructions:

  • Spray, do not soak, do not scrub.
  • Let rest 5 minutes.
  • Blot with clean white towel.

Five minutes later, and I came back, did the blotting.

And took a picture, because I could not believe what a good job this stuff does, even though I’ve used it before, in NJ, on carpeting of that color – but with red wine or Birch Beer soda or spaghetti sauce, all red.

I think it’s the OXYgen. Good for organic spills.

And possibly that I attacked immediately.

You REALLY can’t tell.

And that’s the story of the photo.

The clumsiness I’ll have to watch.

It may be stress.

It may be the beginnings of something else.

Or it may just be that sitting to do things is awkward.


Dinner was delicious. Mostly cold. I didn’t care by then.